Neuroendocrine Tumors (NETs) Support Group

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Thank you! I had my first CT scan after surgery and 3 Lan injections. No tumour...

https://connect.mayoclinic.org/comment/876264/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2023

Comment

@markmark007 The nurse told me the manufacturer was no longer making lanreotide. Ive had more fatigue...

https://connect.mayoclinic.org/comment/1428966/

Discussion: PET Ga-68 Dodatate Scan & Octreotide LAR Injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2025

Comment

My primary NET tumor was surgically removed from the mesentery along with 15 lymph nodes (9...

https://connect.mayoclinic.org/comment/1480992/

Discussion: Anyone had radiation for carcoinoid in Mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12 10:39pm

Comment

I've had 5 lanreotide injections and symptoms have gotten better with each shot. Usually just flatulence...

https://connect.mayoclinic.org/comment/866837/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

Comment

Lanreotide may help keep tumors stable which is why its often the first tool to reach...

https://connect.mayoclinic.org/comment/1448245/

Discussion: Anyone had positive results from Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2025

Comment

Did they remove the cancerous lymphnodes? I had SI NET removed along with 7 lymphnodes removed...

https://connect.mayoclinic.org/comment/1289168/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2025

Comment

Somatuline Depot is still available. Maybe ask your oncologist to write the prescription specifically for that...

https://connect.mayoclinic.org/comment/1335261/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25, 2025

Comment

Bless her heart!!! I have experienced those moments too but the more I have been taking...

https://connect.mayoclinic.org/comment/1293372/

Discussion: Lanreotide side effects: diarrhea constipation, what to do?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 30, 2025

Comment

Yes, it is essential to have CT Scans every month and then every 6 months, and...

https://connect.mayoclinic.org/comment/1288579/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2025

Comment

Welcome, @mmercedesm. I'm tagging other members like @canuk @jonell @stevestenberg31 @nana120 @kc43 @kevinmonroemi, who have experience...

https://connect.mayoclinic.org/comment/1087298/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2024

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