Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

583 total results

Comment

@splendrous, my oncologist is located at the Springfield Clinic Cancer Center. My oncology surgeon is located...

https://connect.mayoclinic.org/comment/1275161/

Discussion: Tumor growth in three month follow up MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5 8:22pm

Comment

Hello @markmark007 This is a good question. Has your wife talked with her oncologist about the...

https://connect.mayoclinic.org/comment/966631/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2023

Comment

I get octreotide injections along with exgeva monthly and yes, I’m pretty wiped out for about...

https://connect.mayoclinic.org/comment/1111700/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2024

Comment

I was diagnosed with stage 4 NET’s December 2022, started in small intestines and metastasized to...

https://connect.mayoclinic.org/comment/901156/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

Comment

I’ve been on octreotide injections for 5 months now I receive 2 shots monthly. The first...

https://connect.mayoclinic.org/comment/919654/

Discussion: Pain post Octreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 27, 2023

Comment

16 Tumors were discovered on my liver December 2022. Started on Lanreotide for 3 months, switched...

https://connect.mayoclinic.org/comment/1111382/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2024

Comment

My primary was a tumor wrapped around my small intestine, discovered in 2007. I have been...

https://connect.mayoclinic.org/comment/898391/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023

Comment

Hi @nana120 I believe your hair loss will stabilize. My hair has really thinned due to...

https://connect.mayoclinic.org/comment/1008942/

Discussion: Anyone have hair loss with lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3, 2024

Comment

I have been receiving the Octreotide injections (Sandostatin, and now lanreotide) for 11 years, every 28...

https://connect.mayoclinic.org/comment/1197117/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 25, 2024

Comment

We sound very similar. Small bowel primary, mesenteric mass with resection in 2022. I have a...

https://connect.mayoclinic.org/comment/1218822/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22 9:33am

Digestive Health

Follow

16063

1 minute ago

Pancreatic Cancer

Follow

3040

2 minutes ago

Follow

7008

25 minutes ago

Melanoma & Skin Cancer

Follow

491

2 hours ago

Cancer: Managing Symptoms

Follow

4806

3 hours ago