Neuroendocrine Tumors (NETs) Support Group

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Comment

I too have grade 2 NET liver metastasis but there was no mention of necrosis. Sorry...

https://connect.mayoclinic.org/comment/1062149/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2024

Comment

MRI every 3 months w/ and w/o contrast substance. I've been told safer and better for...

https://connect.mayoclinic.org/comment/1207619/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2025

Comment

My large tumor is in the liver. Anyone know of how that size located there is...

https://connect.mayoclinic.org/comment/1203264/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3, 2025

Comment

My wife was diagnosed in April 2022, with NET with primary on pancreas, and too many...

https://connect.mayoclinic.org/comment/1207477/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2025

Comment

Is there a NET team anyone can recommend? I had a right upper lobe lobectomy in...

https://connect.mayoclinic.org/comment/794019/

Discussion: NET (Lung + liver metastatis) Radical nephrectomy done for RCC

Support Group: Kidney Cancer

Posted: Jan 8, 2023

Comment

@marct First of all, I can only tell our story which is very similar. My wife...

https://connect.mayoclinic.org/comment/992359/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2024

Comment

Hello Karen, @immmm Understanding the difference between lesions, cystic lesions, liver metastasis and tumors can be...

https://connect.mayoclinic.org/comment/167649/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2017

Comment

I'm stage 4 pancreatic and liver cancer, tail end pnets I've had no surgeries,radiation very little...

https://connect.mayoclinic.org/comment/803506/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2023

Comment

@nofire right now I am not receiving any form of treatment but monitoring of lesions on...

https://connect.mayoclinic.org/comment/1433221/

Discussion: S4, G2 NETS in mesentery. Declined Exploratory Surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2025

Comment

Thank you everyone for your support I will be getting the liver embolization tomorrow I opted...

https://connect.mayoclinic.org/comment/795493/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

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