Neuroendocrine Tumors (NETs) Support Group

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Comment

"The Drs assured me I had no cancer and thought that CgA decrease was insignificant and...

https://connect.mayoclinic.org/comment/1312066/

Discussion: Small Bowel Neuroendocrine Cancer, Metastasis to Mesentery Recurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2025

Comment

I had my pancreatic cancer surgery in Mar 2020 and 5 months ago my scan showed...

https://connect.mayoclinic.org/comment/937482/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

Comment

@retiredinkazoo - I have similar case - huge pNet on the tail ( 20x16 cm) plus...

https://connect.mayoclinic.org/comment/1075652/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2024

Comment

Hello @joy5877 and welcome to the NETs support group on Mayo Connect. I'm pleased that you...

https://connect.mayoclinic.org/comment/940369/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Comment

I like to hear any feedback on this. My doctor recommended stopping lanreotide injection after 2nd...

https://connect.mayoclinic.org/comment/970884/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2023

Comment

I had 3 Lanreotide injections, due for CT scan in June. I noticed my hair falling...

https://connect.mayoclinic.org/comment/863936/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 21, 2023

Comment

I does sound like you have NETs of the mesentery which is the tissue around your...

https://connect.mayoclinic.org/comment/1258023/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14, 2025

Comment

Hello dhtaylor! My HPB surgeon warned me that the medication used for NET care ( Somatulin/Lanreotide)...

https://connect.mayoclinic.org/comment/944197/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2023

Comment

@fim I have a pancreatic neuroendocrine tumor with metastasis to the liver and bones. I do...

https://connect.mayoclinic.org/comment/1507936/

Discussion: Anyone have pancreatic neuroendocrine tumors with carcinoid syndrome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17 9:04am

Comment

I am on Lanreotide - but bp lowered too. Stopped taking bp meds and started taking...

https://connect.mayoclinic.org/comment/1118171/

Discussion: Anyone have problems with elevated blood pressure while on Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2024

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