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266 total results
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Discussions (32)
Comments (234)
Comment
Yes I have had one discovered about two years ago with a heart MRI. It was...
https://connect.mayoclinic.org/comment/907604/
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Discussion:
Has anyone had NETs metastasized to heart?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 4, 2023
Comment
I also have Carcinoid Syndrome, PET scan shows it started in the small intestines and metastasized...
https://connect.mayoclinic.org/comment/878862/
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Discussion:
Where can I find a carcinoid syndrome specialist in Florida?!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 15, 2023
Comment
I was diagnosed with NET’s December, 2022. Started the same, small intestines and spread to the...
https://connect.mayoclinic.org/comment/842035/
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Discussion:
What do I need to know about NETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 12, 2023
Comment
When I found out that I had to have surgery on my stomach because it was...
https://connect.mayoclinic.org/comment/835923/
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Discussion:
Anyone have a stomach NET?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 1, 2023
Comment
My symptoms were bloating, severe abdominal pain resulting in slight temperature spike and vomiting. This happen...
https://connect.mayoclinic.org/comment/829669/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 21, 2023
Comment
Hi, My name is Penny. My wife, Cindy, had surgery on December 6 in which they...
https://connect.mayoclinic.org/comment/797408/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 16, 2023
Comment
It’s never to late you come to the right place , I’m a Neuroendocrine survivor I...
https://connect.mayoclinic.org/comment/768090/
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Discussion:
Newly diagnosed - neuroendocrine tumor in intestines
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 1, 2022
Comment
I am so relieved to hear those two concerns have been resolved in your favor. Thank...
https://connect.mayoclinic.org/comment/163993/
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Discussion:
The Roller Coaster Ride of Cancer
Support Group:
Cancer
Posted: Dec 4, 2019
Comment
I have been on sandostatin since sept 2014. After extensive surgery to remove carcinoids on large...
https://connect.mayoclinic.org/comment/137527/
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Discussion:
My Husband was newly diagnosed with Carcinoid Cancer
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 13, 2017
Comment
Hi Carrie! I am do sorry to hear your news and I completely empathize with your...
https://connect.mayoclinic.org/comment/1073202/
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Discussion:
Neuroendocrine Carcinoma with Liver Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 23, 2024
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