Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,505 total results

Comment

I was diagnosed accidentally in November last year with stage 4 NET's after having a CT...

https://connect.mayoclinic.org/comment/1479087/

Discussion: What does the future look like for a stage 4 NET patient?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 3:43pm

Comment

We did find this out that there is extra help for Medicare patients with the drug...

https://connect.mayoclinic.org/comment/1135041/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2024

Comment

Hey all. My husband was diagnosed with NET that metastasized to liver 5 years ago. Since...

https://connect.mayoclinic.org/comment/1356472/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2025

Comment

Waiting is some times the hardest part. Pnet is the acronym for pancreatic neuroendocrine tumors. Mine...

https://connect.mayoclinic.org/comment/917143/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

Comment

@tinerobison My wife was diagnosed with NET in April 22, with about a 3x5cm mass on...

https://connect.mayoclinic.org/comment/997134/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2024

Comment

Hello @pete1962 and welcome to the NETs discussion on Mayo Clinic Connect. I am glad that...

https://connect.mayoclinic.org/comment/814506/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

Comment

Hi Everyone! I had my liver embolization on the right side of my liver which is...

https://connect.mayoclinic.org/comment/805129/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Comment

Update for folks who have been so helpful - doctor appointment hard but useful. Lanreotide alone...

https://connect.mayoclinic.org/comment/1328851/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

Comment

@splendrous, I hope you saw the helpful post from @jlsgt. Sometimes the original source, also known...

https://connect.mayoclinic.org/comment/1161138/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2024

Comment

Hello...I am a new member here and I am scared. And was recently diagnosed with neuroendocrine...

https://connect.mayoclinic.org/comment/818982/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2023

Follow

9901

3 minutes ago

Pancreatic Cancer

Follow

3500

8 minutes ago

Follow

8063

9 minutes ago

Digestive Health

Follow

18078

1 hour ago

Visiting Mayo Clinic

Follow

6665

1 hour ago