Neuroendocrine Tumors (NETs) Support Group

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Comment

After googling it, it means the tracer or dye they gave you was lighting up something...

https://connect.mayoclinic.org/comment/1301485/

Discussion: Focal SUV levels ga68pet/ct… what does that mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2025

Comment

Hey Jessie, the 3 PET's were over the span of at least 5 years. When they...

https://connect.mayoclinic.org/comment/1277893/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9, 2025

Comment

Am I the only one that Lanreotide makes feel horrid? I’m nauseated and constipated with a...

https://connect.mayoclinic.org/comment/1248824/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2025

Comment

I'm sorry you're going through this When you refer to pet scan was this a gallium...

https://connect.mayoclinic.org/comment/1226791/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2025

Comment

@snd, I can imagine you are frightened. Whenever new symptoms appear, it's easy to jump to...

https://connect.mayoclinic.org/comment/1216734/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2025

Comment

I am equally confused with all these scans reports. On 8 July 24, CT scan revealed...

https://connect.mayoclinic.org/comment/1185942/

Discussion: What causes differences in reading of CAT Scan and MRI imaging?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2024

Comment

Hello @tammyd and welcome to the NETs support group on Mayo Connect. After having surgery three...

https://connect.mayoclinic.org/comment/1128481/

Discussion: My Chromogranin numbers are high. What is a more accurate test?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2024

Comment

Hi @matt2024 , Thanks for responding! I had parathyroid surgery in Feb of this year and...

https://connect.mayoclinic.org/comment/1090296/

Discussion: Recently diagnosed with MEN1

Support Group: Diabetes & Endocrine System

Posted: Jun 20, 2024

Comment

I agree with markmark007. I have two oncologists that I am working with and they both...

https://connect.mayoclinic.org/comment/1085993/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2024

Comment

Hello @freeangel and welcome to Connect. I can't imagine what it would be like to read...

https://connect.mayoclinic.org/comment/277062/

Discussion: I am not ok with this at all

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2019

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