Neuroendocrine Tumors (NETs) Support Group

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Hello @queensmom, I'm glad that you posted an update. It is good that the doctor at...

https://connect.mayoclinic.org/comment/787727/

Discussion: A report from a follow up appointment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

Comment

@sturns - I’m sorry to hear about your wife’s struggle with her treatments, but the results...

https://connect.mayoclinic.org/comment/780522/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 3, 2022

Comment

@georgiamartin - It must be difficult to live with that pain for so long and no...

https://connect.mayoclinic.org/comment/780279/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2022

Comment

Hello everyone. New to everything. Stage 4 but what is NET? Diagnosis is Neuroendocrine pancreatic tumor...

https://connect.mayoclinic.org/comment/776776/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2022

Comment

Hi. Good to hear from you. I will try to help. What I have done has...

https://connect.mayoclinic.org/comment/776368/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

Comment

Hello everyone. I have bilateral Pheochromocytoma's on both my adrenal glands. I live in Oregon. This...

https://connect.mayoclinic.org/comment/764174/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2022

Comment

Hi, its so good to meet someone going through the same thing. were you a patient...

https://connect.mayoclinic.org/comment/743510/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 30, 2022

Comment

Hi, yes i have lost confidence in my former medical team for a dozen of reasons....

https://connect.mayoclinic.org/comment/740221/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2022

Comment

Hi and thanks for your response. I have 3 people including the doctor say how there...

https://connect.mayoclinic.org/comment/739682/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 20, 2022

Comment

My PCP ordered a 5HIAA based on his opinion that I have carcinoid syndrone. It came...

https://connect.mayoclinic.org/comment/721534/

Discussion: Looking for neuroendocrine tumor (NET) with carcinoid syndrome support

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27, 2022

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