Neuroendocrine Tumors (NETs) Support Group

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Comment

My CAPTEM treatment was the same minus the injections. The last two months have only been...

https://connect.mayoclinic.org/comment/956992/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2023

Comment

I can only respond with my own experience. But first off am sending both sympathy and...

https://connect.mayoclinic.org/comment/953249/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Comment

Hello @newnet and welcome to the NETs support group on Mayo Connect. I'm glad that you...

https://connect.mayoclinic.org/comment/941555/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4, 2023

Comment

I am so sorry for her pain, but it is not unusual. However, it does subside...

https://connect.mayoclinic.org/comment/934820/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

Comment

@ralvarez38 My daughter’s Endocrinologist was Dr. Mary Lee Vance at UVA in Charon, VA. Amazing. She...

https://connect.mayoclinic.org/comment/923306/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 3, 2023

Comment

Thanks for thinking of us! Thoughtful of you, and appreciated. Right now I have no symptoms...

https://connect.mayoclinic.org/comment/910889/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 10, 2023

Comment

So glad that you found this video helpful. If you go to YouTube you will find...

https://connect.mayoclinic.org/comment/902641/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26, 2023

Comment

I am new to the group. My husband who is 62 years old starting having problems...

https://connect.mayoclinic.org/comment/887852/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2023

Comment

Dbamos1945 and bubbles 2023 - Dbamos, your response struck a cord with me as your response...

https://connect.mayoclinic.org/comment/885814/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Comment

So sorry that you are going through this. Have you tried other hospital systems that could...

https://connect.mayoclinic.org/comment/874394/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2023

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