Neuroendocrine Tumors (NETs) Support Group

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Comment

@kjstein: I wish you repeated success reducing your tumors, and years of happy living. NETS reminds...

https://connect.mayoclinic.org/comment/1356546/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26, 2025

Comment

@mhcohan NETs specialists are few and far between. I'm not sure what part of the country...

https://connect.mayoclinic.org/comment/1415817/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2025

Comment

@ricki8 thank you so much for your response, still learning how to live between tests. But...

https://connect.mayoclinic.org/comment/1419279/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 20, 2025

Comment

I had an ademocarinoma tumor removed from my top right lobe and at the same time...

https://connect.mayoclinic.org/comment/1427225/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2025

Comment

Well I’m going to Mayo on the 11th for my 6 month gallium scan. I’ve been...

https://connect.mayoclinic.org/comment/940462/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Comment

I just found out I have a second and maybe third paraganglioma, carotid body tumor, this...

https://connect.mayoclinic.org/comment/1163726/

Discussion: Anyone have a paraganglioma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 27, 2024

Comment

I have had a complicated colostomy for over 10 years and I can say that living...

https://connect.mayoclinic.org/comment/1385789/

Discussion: Mayo seeking volunteers: Chemo-Induced Peripheral Neuropathy study

Support Group: Cancer: Managing Symptoms

Posted: Sep 3, 2025

Comment

Hello, i know i have posted here before. it was a while ago i believe my...

https://connect.mayoclinic.org/comment/819254/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Comment

Memorial Sloan Kettering rocks in general. Lots of great people. After my surgery, there were no...

https://connect.mayoclinic.org/comment/812183/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Comment

Good luck to your wife. I’ve had chemo too, but not the pill. Had injections every...

https://connect.mayoclinic.org/comment/810971/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

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