Neuroendocrine Tumors (NETs) Support Group

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Comment

Great question, and yes we are completely aware of the extent of immosuppressive drugs that are...

https://connect.mayoclinic.org/comment/1198319/

Discussion: Wondering if we are making the right choices in our NET fight.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

I’ve had excellent care! Been palliative care since diagnosis. I go to University of Michigan Medical...

https://connect.mayoclinic.org/comment/1190982/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2024

Comment

Everyone I consulted with--from UNM to NYU--said the only treatment for NET in breast is the...

https://connect.mayoclinic.org/comment/907122/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

Comment

https://ronnyallan.net/2022/09/28/living-with-cancer-5-tips-for-facing-things-you-cant-control/

https://connect.mayoclinic.org/comment/1291412/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 27, 2025

Comment

Wow I am sitting here wanting everyone to SURVIVE but unfortunately that won’t happen. I do...

https://connect.mayoclinic.org/comment/1285648/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2025

Comment

It is my understanding that you need to understand the cellular structure of the problem and...

https://connect.mayoclinic.org/comment/772407/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2022

Comment

Every kind of NETS and their location and advance of tumors results in different prognosis for...

https://connect.mayoclinic.org/comment/1264718/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2025

Comment

Thank you!!! Right I’m four years strong in this now. I go to Georgia Cancer Specialist...

https://connect.mayoclinic.org/comment/1271324/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2025

Comment

I had the same symptoms of sweating every day and fainting! Also, my digestive system was...

https://connect.mayoclinic.org/comment/1295067/

Discussion: What should I do? Carcinoid symptoms but no answers.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2025

Comment

Sounds like you're feeling really good, which is awesome. I suspect you can go to a...

https://connect.mayoclinic.org/comment/1221351/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2025

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