Neuroendocrine Tumors (NETs) Support Group

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Comment

@splendrous: I was in this situation last June (2024) - small intestine/stomach primary with liver mets…...

https://connect.mayoclinic.org/comment/1364348/

Discussion: Interested in your experience with treatments of PRRT vs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5 2:15pm

Comment

Absolutely open to sharing. I was diagnosed originally in 2020 after a 30 day bout with...

https://connect.mayoclinic.org/comment/1292381/

Discussion: PanNET and CgA results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29 4:18am

Comment

I was diagnosed in 1993 by a doctor who performed a colonoscopy after heavy rectal bleeding....

https://connect.mayoclinic.org/comment/771371/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2022

Comment

@bluebell, So sorry to hear you’re having struggles with your diet post surgery, but I certainly...

https://connect.mayoclinic.org/comment/943818/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2023

Comment

Hi there, my hubs had had NETS (neoendrocrine tumors) since 2019. I saw the above post...

https://connect.mayoclinic.org/comment/1231187/

Discussion: Lanreotide Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 1:05am

Comment

Hello @vickihorseman and welcome to Mayo Connect. From your post, it looks like you have had...

https://connect.mayoclinic.org/comment/1171737/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

Comment

Digestion issues are different for everyone. I had about a yard of small intestine removed and...

https://connect.mayoclinic.org/comment/879118/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2023

Comment

Gig666, I am somewhat appalled that your docs didn't give you more options rather than just...

https://connect.mayoclinic.org/comment/1054944/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2024

Comment

Hi @allan2022, welcome. I moved your message to the Neuroendocrine Tumors (NETs) Support Group here https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/...

https://connect.mayoclinic.org/comment/810465/

Discussion: Searching for info re NETs and heart issues

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

Comment

3 yrs ago a NET removed from small intestine during endoscopy - since then all labs...

https://connect.mayoclinic.org/comment/1012292/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2024

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