Neuroendocrine Tumors (NETs) Support Group

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Comment

@tjatsaufr: I relate to your concern over radionuclide radiation; however, the nuclear medicine department at your...

https://connect.mayoclinic.org/comment/1358334/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2025

Comment

Hi, Teresa. we all appreciate your initiative on the impact of surgery on our digestive tract,...

https://connect.mayoclinic.org/comment/1352877/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jul 20, 2025

Comment

I was diagnosed with Carcinoid in 2007. The mass had grown around several loops of my...

https://connect.mayoclinic.org/comment/804478/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Comment

I had a hemicolectomy because of a NET tumor of the small intestine and had many...

https://connect.mayoclinic.org/comment/745966/

Discussion: What helps with gas and pain after surgery?

Support Group: Cancer: Managing Symptoms

Posted: Sep 5, 2022

Comment

I've had a Whipple and 2 colon cancer colonectomies; so very little of digestive system left...

https://connect.mayoclinic.org/comment/1483228/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jan 15 3:54pm

Comment

If you Google neoendrocrine carcinoid tumors and read the neoendrocrine tumors q and a plus right...

https://connect.mayoclinic.org/comment/1231828/

Discussion: How does Alcohol use affect Liver NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2025

Comment

@sarahfloranne, Sorry to hear you’ve had this side effect to the Lanreotide - which unfortunately is...

https://connect.mayoclinic.org/comment/876306/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2023

Comment

Welcome, Christine. You're not alone. I moved your message to this existing discussion: - Newly diagnosed...

https://connect.mayoclinic.org/comment/750122/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

Comment

PRRT is hung up with the FDA approval process. I can't post messages with links yet,...

https://connect.mayoclinic.org/comment/127206/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2016

Comment

So glad to find this! Had NET surgery small intestine and mesentery in 2015 after diagnosis...

https://connect.mayoclinic.org/comment/827137/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

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