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Public Support Group 2,526 total results
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Hi there, I'm new here. Doctors diagnosed me with a neuroendocrine tumor in the terminal ileum...
https://connect.mayoclinic.org/comment/1376327/
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Sorry I have been diagnosed with metastasized liver NETs don’t know where the primary is as...
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@nana120, I love your new profile picture - your Halloween zebra costume is perfect. In addition...
Discussion
Could a mass on adrenal gland be linked to my carcinoid lung tumor?
I am 75. Had right upper lung lobe removed in August 2022Have multiple 5 cm carcinoid tumorettes in lungCould a mass on my adrenal gland...
Discussion
Questions I should ask before surgery for Lung NETs?
I’m scheduled for a zoom call with a nurse Jan 8 in preparation for robotic surgery of a 13mm typical neuroendocrine carcinoid. I prefer to...
Discussion
How rare is it???
I have stomach nets, sibo (small intestinal bacterial overgrowth), Autoimmune Atrophic gastritis and Stomach nets. I’m currently on the wait and watch protocol for the...
Discussion
Tincture of Opium for bowel issues with diarrhea
I have been able to get by day to day with my presciption for Tincture of Opium (Paragoric). This is the miracle drug, I have...
Discussion
Mother might have neuroendocrine tumors, is being told she has IBS
Maybe this is rant post, but my mom aged 56 has been having diarrhoea and flushing since past 7 months and I've seen three gastroenterologists,...
Discussion
Cost of treatment
I am currently living in Panama, without insurance and have been diagnosed with NETS, biopsied and they believe its origin is the small intestine ....
Discussion
DIPNECH diagnosis. Has anyone had radiation?
Right middle lobectomy in Nov '24 at Mayo Scottsdale. 3 carcinoids removed were all malignant and 1 lymph node involved out of 23 taken. DIPNECH...
Discussion
FDG PET scan vs. 68Ga DOTATATE PET scan for neuroendocrine cancer
I would be curious to see if there are any laymen articles regarding the use of FDG PET scan vs. the Dotatate PET scan. In...
Discussion
I am one year out with my diagnosis just finished 4th round of PRRT
It’s been a long path, years of flushing, stomach cramps and diarrhea that came and went with no warning or explanation. Had a resection of...
Discussion
Guide to Understanding Carcinoid Syndrome
To those in our Mayo Connect Carcinoid/NET group, @amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 @junebug15....
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