Neuroendocrine Tumors (NETs) Support Group

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Comment

My experience is very similar to those of @firepowr. Three of the largest tumors in my...

https://connect.mayoclinic.org/comment/828121/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

Comment

@hollywood817 What prompted the biopsy, did You have imaging done before. I have plenty of liver...

https://connect.mayoclinic.org/comment/812431/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Comment

That was 8/22 when I got diagnosed with a pancreatic NET that spread to my liver....

https://connect.mayoclinic.org/comment/935792/

Discussion: Follow up surgery for PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2023

Comment

I have pNET with liver metastases. I had leg swelling after my first CAPTEM treatment. It...

https://connect.mayoclinic.org/comment/883873/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

My wife was diagnosed with NET in April 2022, with mass on tail of pancreas, and...

https://connect.mayoclinic.org/comment/797689/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

Comment

Sorry for the delay in responding. Where are things today? Any changes? I have a pancreatic...

https://connect.mayoclinic.org/comment/1143967/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19 10:28am

Comment

My husband was diagnosed with GI tract stage 4 Neuroendocrine carcinoid tumor March,2022. He had surgery...

https://connect.mayoclinic.org/comment/1048670/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10 9:37pm

Comment

Thanks for your post melmangen. A hemangioma is like a birthmark. I have them on my...

https://connect.mayoclinic.org/comment/794072/

Discussion: NET (Lung + liver metastatis) Radical nephrectomy done for RCC

Support Group: Kidney Cancer

Posted: Jan 8, 2023

Comment

Hi I had an exceptional NET specialist who started me Lanreotide after 3 injections the side...

https://connect.mayoclinic.org/comment/847916/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23, 2023

Comment

Thanks very: much for sharing. Were you taking any medications prior to Lanreotide three months ago?...

https://connect.mayoclinic.org/comment/1171155/

Discussion: Experience w/ watch and wait approach for metastatic liver tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10 10:21am

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