Neuroendocrine Tumors (NETs) Support Group

I have been able to get by day to day with my presciption for Tincture of Opium (Paragoric). This is the miracle drug, I have...

Maybe this is rant post, but my mom aged 56 has been having diarrhoea and flushing since past 7 months and I've seen three gastroenterologists,...

I am currently living in Panama, without insurance and have been diagnosed with NETS, biopsied and they believe its origin is the small intestine ....

Right middle lobectomy in Nov '24 at Mayo Scottsdale. 3 carcinoids removed were all malignant and 1 lymph node involved out of 23 taken. DIPNECH...

I would be curious to see if there are any laymen articles regarding the use of FDG PET scan vs. the Dotatate PET scan. In...

It’s been a long path, years of flushing, stomach cramps and diarrhea that came and went with no warning or explanation. Had a resection of...

To those in our Mayo Connect Carcinoid/NET group, @amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 @junebug15....

It's extremely difficult to face the fact of recurring cancers. After treatments we try and get away from it all and live our life. Then...

Hello all, I’ve noticed that there have been quite a few questions on here about what to eat and what to avoid when you have...

With the implementation of the 'Plummer Project', moving all Mayo health records to the Epic system (from GE), a $1.5 billion project, I wonder what...