Neuroendocrine Tumors (NETs) Support Group

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Comment

I got grade 2 stage 4 and lanreotide injections did not work but prrt did. Had...

https://connect.mayoclinic.org/comment/1352316/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2025

Comment

Hi cu2 The contrast dye in the C.T. scans makes quite a difference. Plus, like me,...

https://connect.mayoclinic.org/comment/1280465/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2025

Comment

Where is your NET? Could that be partially blocking your GI system? I had a partial,...

https://connect.mayoclinic.org/comment/862953/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2023

Comment

Thanks for sharing this video. As advances in medicine are rapidly growing, and as this video...

https://connect.mayoclinic.org/comment/928128/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2023

Comment

@tomrennie I was diagnosed in January of 2024. Unfortunately, since I had very few symptoms the...

https://connect.mayoclinic.org/comment/1488216/

Discussion: Reccurrenct NETs and side effects of cap/tem

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21 2:25pm

Comment

I have a neuroendocrine pancreatic tumor. I have had two treatments with Lanreotide. I have so...

https://connect.mayoclinic.org/comment/874960/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2023

Comment

Yes, I had the swollen feet and joints before I started Lanreotide shots every month. I...

https://connect.mayoclinic.org/comment/1197423/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2024

Comment

@hopeful33250 @ahtaylor @joannem @tomewilson It’s nice to meet everyone. I will be happy to connect with...

https://connect.mayoclinic.org/comment/134544/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

Comment

ALSO ask your oncologist and your insurance provider why they are 'substituting' Samotuline Depot with Lanreotide....

https://connect.mayoclinic.org/comment/1357972/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2025

Comment

I get Lanreotide and have gotten the lumps at the injection site. It is a big...

https://connect.mayoclinic.org/comment/1357956/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2025

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