Neuroendocrine Tumors (NETs) Support Group

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Comment

Looks like my first tests were done on my biopsies and then had follow up blood...

https://connect.mayoclinic.org/comment/1042936/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30, 2024

Comment

Hello @maymaria and welcome to Mayo Connect. I can certainly understand your concern about your daughter....

https://connect.mayoclinic.org/comment/982471/

Discussion: Appendiceal Neuroendocrine Tumor: any experiences to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2023

Comment

How high is too high for Chromogranin A? Mine was 2590 and urine 5-HIAA, somatostatin level...

https://connect.mayoclinic.org/comment/893988/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2023

Comment

Chromogranin is a fairly reliable biomarker used to monitor patients with neuroendocrine cancers. Mine was up...

https://connect.mayoclinic.org/comment/882094/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

Comment

My Chromogranin A was 1507 last year and the PET was negative. In February I was...

https://connect.mayoclinic.org/comment/880883/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2023

Comment

My wife has (and has had for more than a year) Chromogranin A levels of 2000...

https://connect.mayoclinic.org/comment/825676/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2023

Comment

I am 69 years old and am diagnosed with multiple liver metastasis from lung carcinoid tumor....

https://connect.mayoclinic.org/comment/825019/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2023

Comment

Hello @freeangel and welcome to Connect. I can't imagine what it would be like to read...

https://connect.mayoclinic.org/comment/277062/

Discussion: I am not ok with this at all

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2019

Comment

The specialist I saw at Iowa, Dr Dillon, is in the same clinic as the Drs....

https://connect.mayoclinic.org/comment/137538/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2017

Comment

Hey Jessie, the 3 PET's were over the span of at least 5 years. When they...

https://connect.mayoclinic.org/comment/1277893/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9, 2025

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