Support Groups

Neuroendocrine Tumors (NETs) Support Group

Lock icon Public Support Group
Clear Search
191 total results
Discussion
PRRT treatment how does it work?
My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...
Last active: Jun 28, 2024
Discussion
Cough ! What could it be?!
I had Nets in small bowel. Got my surgery on November last year. Since then, am coughing a lot. I did the scan thought it...
Last active: Mar 13, 2023
Discussion
NETs what to eat? What to avoid?
Hello sweeties As newly diagnosed, as we know we need to know everything about our cancer triggers and what makes us gain control of our...
Last active: Jan 5, 2023
Discussion
determination of primary site of NET
My son, age 29, who has had very serious digestive problems (sigmoid volvulus resulting in left hemicolectomy, small bowel blockage, bowel perforation, strangulated abdominal hernia,...
Last active: Feb 13, 2023
Discussion
I recently had surgery to remove NET in small intestine
They did a rt hemicolectomy and small bowel resection. They also did a wedge resection of my liver. They removed all of the tumor. Liver...
Last active: May 12 7:42am
Discussion
What’s next: Seeking advice on how to navigate diagnosis appointments?
Hi there! I’ve been posting recently and Thank god I asked about the test and raised my concerns. Before Mayo, I’m flying to MD Anderson...
Last active: May 20, 2024
Discussion
I am one year out with my diagnosis just finished 4th round of PRRT
It’s been a long path, years of flushing, stomach cramps and diarrhea that came and went with no warning or explanation. Had a resection of...
Last active: Jan 22 10:13am
Discussion
Small Intestine Resection
Hello Everyone I hope ALL is well today. It’s been a long time since I’ve been on here. I’ve been through a lot health wise...
Last active: Apr 23 11:20am
Discussion
NED GI NETS since 2012. New finding on annual chest CT, Tubular Mucoid
Original dx 2012 NET in terminal ileum. Right hemicolectomy, small bowel resection with 22 mesentary nodes removed, 2 positive. Had my annual imaging 10/19/22 MRI...
Last active: Nov 27, 2022
Discussion
Carcinoid syndrome; NET not found
I have been receiving treatment for carcinoid syndrome for 3 years. It is believed tumor is in small intestine. Doctors waffle back and forth about...
Last active: Apr 22, 2024