Neuroendocrine Tumors (NETs) Support Group

What is my life expectancy as a result of my NET? Diagnosed 3 years ago with Grade 1, Stage 4 NETs. Primary tumor is probably...

I received the results of a lung biopsy last week & it showed DIPNECH. I see an oncologist next week to discuss treatment options. Pulmonologist...

20 months after NET found in small intestine and already spread to liver. I have had resection, monthly octreotide injections, and Lutathera. The cancer seemed...

1. Net's found in 2017 - pancreas / small intestine co- primaries 2. Lanreotide until 2023 when progression was identified including bone metastasis. 3. 4...

If anyone has used the short acting Ocreotide for there treatment can you please share with me how it is dosed How is the injection...

Besides specialized nuclear testing scans, do any elevated blood tests indicate a possible NET tumor besides the 24 hour urine test with creatine? Is it...

I have been doing injection for a year now but as of a few months ago after the injection I am feeling very sluggish, and...

My sister has Grade 3 pancreatic neuroendocrine tumor with liver nodules. She was initially treated with CapTem, but it didn’t work, so the doctor switched...

Does anyone know how much CGA results can vary from lab to lab. Following are the last four CGA results for my wife: 75 (11/16...

My mom is 81 and she was just diagnosed with pancreatic cancer stage IV that has metastasized to her liver. Her oncologist has suggested that...