Neuroendocrine Tumors (NETs) Support Group

Can long term otreotide lower your serum gastrin levels by lowering them and thus create a false negative. Or making your gastric levels just not...

I am currently on octreotide every 28 days and I am currently stable after PRRT treatmentsMy NET has metastasized to my bones I have been...

Hi! Hope all are well! I am moving to Winston Salem NC and need to find a NET team to continue my 28day octreotide injections...

Hi everyone. After a very long month, I finally saw a surgeon for my 8mm si NETS. I am symptomatic. I was totally expecting to...

What is my life expectancy as a result of my NET? Diagnosed 3 years ago with Grade 1, Stage 4 NETs. Primary tumor is probably...

Small bowel Nets with Mets, Grade 2, stage 4. I just had my 6 month follow up scan & the news is great! I have...

20 months after NET found in small intestine and already spread to liver. I have had resection, monthly octreotide injections, and Lutathera. The cancer seemed...

If anyone has used the short acting Ocreotide for there treatment can you please share with me how it is dosed How is the injection...

I have been doing injection for a year now but as of a few months ago after the injection I am feeling very sluggish, and...

Besides specialized nuclear testing scans, do any elevated blood tests indicate a possible NET tumor besides the 24 hour urine test with creatine? Is it...