Neuroendocrine Tumors (NETs) Support Group

I am currently preparing to begin Lutathera at Mayo in Jacksonville after showing progression while on Clinical trial CAM2029 octreotide. Fully terrorized as what to...

If anyone has used the short acting Ocreotide for there treatment can you please share with me how it is dosed How is the injection...

Besides specialized nuclear testing scans, do any elevated blood tests indicate a possible NET tumor besides the 24 hour urine test with creatine? Is it...

I have been doing injection for a year now but as of a few months ago after the injection I am feeling very sluggish, and...

Does anyone know how much CGA results can vary from lab to lab. Following are the last four CGA results for my wife: 75 (11/16...

My mom is 81 and she was just diagnosed with pancreatic cancer stage IV that has metastasized to her liver. Her oncologist has suggested that...

I’m not sure if I’m in the right place or not but I started this conversation here bc my Levels were so high. Has anyone...

I have stomach nets, sibo (small intestinal bacterial overgrowth), Autoimmune Atrophic gastritis and Stomach nets. I’m currently on the wait and watch protocol for the...

I have read *** that a carcinoid crisis could be triggered during a dental procedure using anesthetics. I have upcoming dental work required. (I am...

I have grade 2, stage IV neuroendocrine tumor in the liver, KI-67 6-8%. 4x3.1 cm mass plus additional small tumors. Differentiated and non-functioning. No origin...