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Neuroendocrine Tumors (NETs) Support Group

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Discussion
pNET with liver metastases: What is necrosis?
Hi,I was diagnosed with Pnet grade 2 level 4 in February. I had my first pet scan last Wednesday but haven't been able to talk...
Last active: May 20, 2024
Discussion
NET's and possible liver transplant discussion
Today, during our meeting with our NET cancer team, we were reviewing the results from CT, MRI, and PET scan, and in general we are...
Last active: Jul 18, 2023
Discussion
Anyone have stretching of the liver capsule?
HiHas anyone had stretching of the liver capsule? Slight pain in upper abdominal now and then and last scan three weeks ago was stable.Not sure...
Last active: Nov 19, 2023
Discussion
New NET in liver and small intestine
‘Im a 74 yr old woman. A NET tumor in my small intestine was removed about 18 months ago. This month a CT found two...
Last active: Nov 12, 2025
Discussion
Liver masses found on CT Scan
Hello all, I wanted to start a discussion on a finding from a CT Scan I had yesterday and hope I am in the right...
Last active: Jan 23, 2025
Discussion
Anyone have swelling with liver metastases?
hi, does anyone have swelling in the ankles in face along with their liver metastases thanks
Last active: Oct 6, 2025
Discussion
Metastasis to the Liver Caudate Region (Segment 1)
In reference to my wife: Recent C/T of abdomen and pelvis showed "increased hypervascularity in the haptic metastasis in the caudate". Initial discovery Background: NET...
Last active: Jul 16, 2025
Discussion
Primary Small Bowel NETS, Liver Mets
I’ve included a photo of my liver Mets in case others are interested in what it actually looks like. Photo was taken by NETS surgeon...
Last active: Dec 23, 2025
Discussion
NET in jejunum spread to liver: Treatment options?
Hi Everyone,Has anyone had an NET that originated in the jejunum (small intestine) that has spread to liver? If so, I am wondering how your...
Last active: Apr 19, 2025
Discussion
Anyone heard about Histotripsy for liver NETs?
Has anyone heard of Histotripsy? It's a technique that uses sound waves to break down tumors for liver treatment.
Last active: Feb 27, 2024