Neuroendocrine Tumors (NETs) Support Group

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Comment

I’ll speak to 3 & 4. My wife with NETs (ileum), 50 METS to liver has...

https://connect.mayoclinic.org/comment/134661/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2018

Comment

Hi. My primary was found in the terminal ileum. Metastasis to nodes, liver, and other organs.i...

https://connect.mayoclinic.org/comment/160176/

Discussion: Carcinoid Cancer of the Liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 25, 2017

Comment

Hi, I too have NETs that were discovered in my ileum after being in the ER...

https://connect.mayoclinic.org/comment/777826/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2022

Comment

I also had multiple small lesions in my liver and a few larger ones. I decided...

https://connect.mayoclinic.org/comment/813447/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Comment

i actually feel good since surgery. I have had check up every 6 months since surgery....

https://connect.mayoclinic.org/comment/1065049/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 9 5:52pm

Comment

I am a patient of Dr Starr's at Mayo Clinic Jacksonville. My NETS were ileum primary...

https://connect.mayoclinic.org/comment/876912/

Discussion: Where can I find a carcinoid syndrome specialist in Florida?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

My husband has much the same type of NET as you. It is grade 1 but...

https://connect.mayoclinic.org/comment/837108/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3, 2023

Comment

I was first diagnosed with NETs in 2004 so I’ve had LOTS of lab-work done over...

https://connect.mayoclinic.org/comment/889603/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2023

Comment

Hi, I am living in Adelaide. South Australia. I went through chemo with non Hodgkins lymphoma...

https://connect.mayoclinic.org/comment/819077/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Comment

I was diagnosed in 2012 as a typical mid-gut, Ileum primary, liver mets and lymphnode mets...

https://connect.mayoclinic.org/comment/869112/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30, 2023

Discussion

GI NET attached to pancreas supposedly non-producing

https://connect.mayoclinic.org/discussion/ginet-attached-to-pancreas-supposedly-non-producing/

I had surgery to remove 3 nets from my bowel in September 2023One was attached to my pancreasThe primary was in my illeum and the...

Support Group: Neuroendocrine Tumors (NETs)

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