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Neuroendocrine Tumors (NETs) Support Group

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My Husband was newly diagnosed with Carcinoid Cancer
My husband was diagnosed with carcinoid on 1/18/17. He had surgery on 2/3/17 to remove 18" of his ileum small intestine (36 small tumors were...
Last active: Aug 14, 2017
Discussion
Diagnosed with NET si-NET Stage 1 Grade 1
I went on 1/3 for my first preventative colonoscopy. I was scared to death as I am a worry wort lol. Colonoscopy went fine only...
Last active: Jun 21, 2025
Discussion
Cu-64 Dotatate PET results show no malignancy. What’s next?
Hi all,I was diagnosed six weeks ago with NET after a small bowel blockage. NG tube and a ton of pain meds relieved my symptoms...
Last active: Apr 17, 2025
Discussion
Lanreotide side effects: Anyone having GI issues?
4 yrs ago routine prostate MRI showed nets in my Ilium of small intestine, surgery 2022 to remove 2 feet of small intestine and about...
Last active: Jan 11 10:11am
Discussion
2nd 3 month follow up
My wife has well differentiated, grade 2 stage 4 NET to the terminal illeum (which was removed) w mets to the liver and pancreas -...
Last active: Oct 5, 2025
Discussion
Carcinoid Crisis Questions
My wife has well differentiated, grade 2 stage 4 NET to the terminal illeum (which was removed) w/ mets to the liver and pancreas which...
Last active: Oct 19, 2025
Discussion
GI NET attached to pancreas supposedly non-producing
I had surgery to remove 3 nets from my bowel in September 2023One was attached to my pancreasThe primary was in my illeum and the...
Last active: Feb 6, 2024