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Neuroendocrine Tumors (NETs) Support Group

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Discussion
DIPNCEH
https://connect.mayoclinic.org/discussion/dipnceh/
I had a lobectomy after a biopsy showed my nodule was malignant. It turned out to be typical carcinoid. Also that I have DIPNECH. My...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Jun 19, 2025
Discussion
DO I need 2 teams if I have both Nets-lung and DIPNECH?
https://connect.mayoclinic.org/discussion/do-i-need-2-teams-if-i-have-both-nets-lung-and-dipnech/
I have been diagnosed with both NETs-Lung and DIPNECH. Do I need two teams to be involved since I have two different conditions or one...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Oct 17, 2025
Discussion
I am 75 and have carcinoid tumors NET in lungs
https://connect.mayoclinic.org/discussion/i-am-75-and-have-carcinoid-tumors-net-in-lungs/
One doctor suggested that I have DIPNECH I do have small carcinoids throughout my lungs. They were discovered when an Adenocarcinoma and my top right...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Apr 24, 2025
Discussion
Neuroendocrine Tumors (NETs) Q&A with a NETs Expert
https://connect.mayoclinic.org/discussion/neuroendocrine-tumors-nets-qa-with-a-nets-expert/
Just watched an hour long Q&A session on NETs with Dr. Eric Liu who is dedicated to NETs at his clinic in Denver. The questions...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Feb 21, 2025