Neuroendocrine Tumors (NETs) Support Group

Hi, I’m 48 years old. I’ve been seeing doctors for years because of profound fatigue, headaches, trouble swallowing and on and on. Basically have been...

High grade neuroendocrine carcinoma (small cell carcinoma) of the bladder.The tumour cells express CK (weakly), Synaptophysin, Chromogranin and TTF-1.They are immunonegative for GATA-3 and p63.The...

Hi ..i did distal pancréatectomy with splectomy since 2 years..it was Pnet grade 2 ..last year my MRI was clean..now since 2 week minimum i...

I recently had a routine EGD and a polyp/tumor was removed and the pathology report stated a diagnosis of "well-differentiated neuroendocrine tumor, Grade II". My...

It's been 5 years since my Carcinoid was removed from my colon (Ilium). At that time, they found it had also spread to 2 of...

Hi, my name is Mikhail, im from Moscow, Russia. I have had NET of small incestine, surgery in july, 2023. G1, ki67-2%, pT1NOMO. Need to...

My 15 year old daughter had a 0.8cm appendiceal tumor in the distal end(mesoappendix and subserosal involvement) removed in July 2023. Since then she has...

I am a bit concerned and not sure if I am overreacting, but my GI doctor wants me to have a NetSpot scan done. I...

I'm a 41 yr old male and for the last 16 months I have had almost daily flushing (face, ears, chest, upper back/shoulders) episodes along...

I was diagnosed late February 2025 by liver lesion biopsy with neuroendocrine grade 2, well differentiated. Ga68 Dotatate Pet scan end of March confirmed pancreas...