Neuroendocrine Tumors (NETs) Support Group

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I would encourage you to become your best advocate. This is done by educating yourself in...

https://connect.mayoclinic.org/comment/802379/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

Comment

I don’t single anyone or him out. We don’t have visitors, he is the only one....

https://connect.mayoclinic.org/comment/786900/

Discussion: Visitor etiquette for NETs patient

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2022

Comment

Hello @sanjaykumar1, I can certainly understand your concern about the CGA level rising. It is hard...

https://connect.mayoclinic.org/comment/776826/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2022

Comment

I forgot to add that the youngest carcinoid patient I have met & briefly know was...

https://connect.mayoclinic.org/comment/773745/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2022

Comment

Hello @gneiss50 I appreciate you sharing your journey with NETs. Many of us with NETs share...

https://connect.mayoclinic.org/comment/758993/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2022

Comment

Hello @smart1, I'm glad that @colleenyoung tagged me for this discussion. As I've had three surgeries...

https://connect.mayoclinic.org/comment/753806/

Discussion: Need help with diet after a hemicolectomy....

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2022

Comment

@rowlandsb, I have some options for your daughter. She is welcome to join Mayo Clinic Connect...

https://connect.mayoclinic.org/comment/744223/

Discussion: Support for Young Adult with carcinoid tumor on ovary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2022

Comment

Hi, My oncologist has sent me to palliative care and they are helping but nothing tried...

https://connect.mayoclinic.org/comment/734944/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Aug 7, 2022

Comment

I live in Long Island

https://connect.mayoclinic.org/comment/718870/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2022

Comment

Just a note: I like the approach my oncologists has... 1. get things in order 2....

https://connect.mayoclinic.org/comment/706933/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: May 10, 2022

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