Neuroendocrine Tumors (NETs) Support Group

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Hi! I was dx'ed with Stage 4 melanoma in 2009. I was given 6 months to...

https://connect.mayoclinic.org/comment/85530/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2015

Comment

I'm glad that you found this forum, @nofire. I found support on Mayo Connect when I...

https://connect.mayoclinic.org/comment/1396814/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2025

Comment

jlsgt: It has been a real journey - have learned that one must be the best...

https://connect.mayoclinic.org/comment/1410585/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2025

Comment

@susu2 @odette @merpreb, thanks for sharing your experiences. Susu, technically speaking hiccups are involuntary contractions of...

https://connect.mayoclinic.org/comment/265599/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Jun 12, 2019

Comment

@hopeful33250 Life saving burst ovarian cyst- cut horizontal by gyno then and vertical for exploratory by...

https://connect.mayoclinic.org/comment/1409994/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Oct 6, 2025

Comment

Thank you! It's been like a story with different points of view. The radiation oncologist has...

https://connect.mayoclinic.org/comment/819000/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2023

Comment

Happy to have found this support group! I have a near 6 cm paraganglioma from my...

https://connect.mayoclinic.org/comment/810104/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2023

Comment

I take cosentyx for arthritis which I sometimes wonder if this could be causing my NET...

https://connect.mayoclinic.org/comment/805017/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Comment

Hello, I have NET related pancreatic cancer. My mother died of pancreatic cancer which was diagnosed...

https://connect.mayoclinic.org/comment/804523/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Comment

We live in Orlando Florida. Mom came to the ER of Orlando Health Hospital thinking she...

https://connect.mayoclinic.org/comment/804283/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

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