Neuroendocrine Tumors (NETs) Support Group

Number 1......I have realized my stool has been kind of chunky and yellowish for a couple months.......so I read that can be from stress alone,...

Hello all. My Info. (Retired 2022. ECMO Specialist Perfusion/Registered Respiratory Therapist and 35 years in Critical healthcare)Severe Asthma(environmental) my whole life. Never smoked. A glass...

Hi everyone i was diagnosed w a carcinoid tumor of the appendx. It was removed 8 m again along w my rt colon. Fast forward...

I went on 1/3 for my first preventative colonoscopy. I was scared to death as I am a worry wort lol. Colonoscopy went fine only...

So, I'm writing this on behalf of my mom. She was first diagnosed with pancreatic neuroendocrine cancer in Sept/2019, because of the extent of the...

My husband's labs are all indicating NET. His Chromogranin levels are 2474 and repeated is 1944. PET Scan did not light up. Next week is...

I am seeking input about experiences with losing the tail of the pancreas and spleen. Has this been the right choice for you? I will...

I am 75. Had right upper lung lobe removed in August 2022Have multiple 5 cm carcinoid tumorettes in lungCould a mass on my adrenal gland...

I’m scheduled for a zoom call with a nurse Jan 8 in preparation for robotic surgery of a 13mm typical neuroendocrine carcinoid. I prefer to...

I have stomach nets, sibo (small intestinal bacterial overgrowth), Autoimmune Atrophic gastritis and Stomach nets. I’m currently on the wait and watch protocol for the...