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Discussions (128)
Comments (1,498)
Comment
I understand you have had neuroendocrine tumors for many years. Were you receiving any treatment prior...
https://connect.mayoclinic.org/comment/1171846/
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Discussion:
Newly diagnosed - neuroendocrine tumor in intestines
Support Group:
Neuroendocrine Tumors (NETs)
Posted: 6 days ago
Comment
I had 60% of my colon removed 5 years ago. I am glad you caught it...
https://connect.mayoclinic.org/comment/1011779/
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Discussion:
NET in illeum, surgery or proper nutrition?!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 8 9:16am
Comment
@ahtaylor I was noticing that you were going to have a calcium stimulation test. Has that...
https://connect.mayoclinic.org/comment/839748/
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Discussion:
Recurrence in Liver after Whipple
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 8, 2023
Comment
No I had a lumpectomy in Feb. and now it has shown up blow my right...
https://connect.mayoclinic.org/comment/1155643/
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Discussion:
Merkel Cell Carcinoma: I'd like to hear from others
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 11 10:18pm
Comment
I had surgery on Feb.1. Distal pancreatectomy, removal of part of the stomach, gallbladder and spleen.,...
https://connect.mayoclinic.org/comment/822921/
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Discussion:
NET lung with Liver Metastasis (stage 4)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 8, 2023
Comment
Start of a new journey: Pathology report of liver biopsy indicating metastatic high grade neuroendocrine cell...
https://connect.mayoclinic.org/comment/810954/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 13, 2023
Comment
I have not had the calcium stimulation test yet. It is coming up soon. However, I...
https://connect.mayoclinic.org/comment/839764/
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Discussion:
Recurrence in Liver after Whipple
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 8, 2023
Comment
She has a well-differentiated grade 3 PNET that metastases to the liver. There were quite a...
https://connect.mayoclinic.org/comment/934866/
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Discussion:
Carcinoid syndrome; NET not found
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 23, 2023
Comment
Hi, Mark! I started PRRT with Lutathera in December 2022. I had three treatments. Scans in...
https://connect.mayoclinic.org/comment/881873/
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Discussion:
Post Lu177 PRRT Treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 20, 2023
Comment
I appreciate you adding information about your journey with NETs to this discussion group, @quinnie2023. I'm...
https://connect.mayoclinic.org/comment/1166556/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 2 8:21am
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