Neuroendocrine Tumors (NETs) Support Group

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Comment

@ricki8- I have been on Lanreotide for 2 yrs on March 10 :). My gallbladder was...

https://connect.mayoclinic.org/comment/1255238/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2025

Comment

@dbamos1945 - so far my disease is stable, no new growth after 16 months on Lanreotide....

https://connect.mayoclinic.org/comment/1109538/

Discussion: Facial and lip sores from lanreotide injections for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2024

Comment

Hello, all my fellow NET travelers. I saw Dr. Dasari at MD Anderson. He gave me...

https://connect.mayoclinic.org/comment/829631/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

Comment

I had bloating with the first 2 lanreotide injections. Took gasX. Haven’t had any bloating with...

https://connect.mayoclinic.org/comment/875273/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9, 2023

Comment

Continued tumor growth while taking lanreotide injections, so was switched to oral chemo, Everolimus. CT scan...

https://connect.mayoclinic.org/comment/1439309/

Discussion: What is the best treatment for carcinoid tumor in mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2025

Comment

@swede79: I thought about you today, hoping that your oncologist meeting was informative and your 1st...

https://connect.mayoclinic.org/comment/1252915/

Discussion: Is there a particular diet to have when starting Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7, 2025

Comment

I have not had PRRT, still waiting to see if I am accepted to the trial....

https://connect.mayoclinic.org/comment/829736/

Discussion: COMPOSE PRRT Lu Edotreotide Trial Study

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

Comment

I have been on Lanreotide ( every 4 weeks) for 2+ yrs now for pNET with...

https://connect.mayoclinic.org/comment/1279952/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2025

Comment

Hello @marciamiller and welcome to Mayo Connect. I am glad that you found this forum. DIPNECH...

https://connect.mayoclinic.org/comment/1163824/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28, 2024

Comment

Do you have neuropathy in addition to neuroendocrine tumors? Did you have the neuropathy before starting...

https://connect.mayoclinic.org/comment/1018230/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2024