Neuroendocrine Tumors (NETs) Support Group

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Comment

Mostly what I’ve read explains chromogranin a is a reliable bio marker for endocrine cancers. It...

https://connect.mayoclinic.org/comment/1088071/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2024

Comment

I’ve had test after test for vague symptoms of profound fatigue, trouble swallowing, weight loss, and...

https://connect.mayoclinic.org/comment/277060/

Discussion: I am not ok with this at all

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2019

Comment

So the liver is where the net started or did it start somewhere else and spread...

https://connect.mayoclinic.org/comment/267666/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2019

Comment

Yes, I have had 3 different upper GI's, as well as a colonoscopy. They were all...

https://connect.mayoclinic.org/comment/186247/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 26, 2018

Comment

Has anyone heard anything about ISI labs possibly having a lot of false positives with their...

https://connect.mayoclinic.org/comment/102026/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2017

Comment

Hi @gaylejean. Thanks for sharing more of your treatment. I'm in the process of the 24...

https://connect.mayoclinic.org/comment/101999/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2016

Comment

My husband has a no functional pnet with negative blood work so I’m not as familiar...

https://connect.mayoclinic.org/comment/1048909/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2024

Comment

Looks like my first tests were done on my biopsies and then had follow up blood...

https://connect.mayoclinic.org/comment/1042936/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30, 2024

Comment

Hello @maymaria and welcome to Mayo Connect. I can certainly understand your concern about your daughter....

https://connect.mayoclinic.org/comment/982471/

Discussion: Appendiceal Neuroendocrine Tumor: any experiences to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2023

Comment

Joy5877: Colleen please correct me if I am sharing incorrect or misleading info: Neuroendocrine carcinoid tumors...

https://connect.mayoclinic.org/comment/972554/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2023

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