Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi. Thanks for all the information. My 5-HIAA Urine was 1.4 Calculated Total (E+NE) was 18....

https://connect.mayoclinic.org/comment/1333833/

Discussion: So many questions about wjether or not I have Carcinoid Cancer/NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2025

Comment

I had the very same surgery at Stanford in 2007. They are unlikely to return in...

https://connect.mayoclinic.org/comment/1339968/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 2, 2025

Comment

Thank you for all the information. I live in IL and all the net specials are...

https://connect.mayoclinic.org/comment/1344294/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9, 2025

Comment

Hi Colleen I was seen at Mayo in Scottsdale when I lived there in 2012. I’m...

https://connect.mayoclinic.org/comment/1318256/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2025

Comment

I've had NETs of the small intestine (Mesentery) for many years. Let me offer this hypothetical:...

https://connect.mayoclinic.org/comment/1348269/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2025

Comment

Hi there, I am so sorry you’re going through this with your son. Glucagonoma is indeed...

https://connect.mayoclinic.org/comment/1351010/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2025

Comment

Thank you very much for your reply. I am happy to hear that everything was well...

https://connect.mayoclinic.org/comment/1205704/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2025

Comment

I also have struggled with this in the past. Limiting salt can help. My surgeon suggested...

https://connect.mayoclinic.org/comment/1191512/

Discussion: Anyone have experience with Acites?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 16, 2024

Comment

Hello @jlw218 and welcome to Neuroendocrine support group on Mayo Connect. I appreciate your helpfulness to...

https://connect.mayoclinic.org/comment/1177317/

Discussion: Neuroendocrine insulinoma and MDS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2024

Comment

Thank you, Colleen, It is nice to have a connection with people on the same road....

https://connect.mayoclinic.org/comment/1075210/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2024

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