Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,455 total results

Comment

And good morning to you. It's a different feeling to get a diagnosis of recurrence. Not...

https://connect.mayoclinic.org/comment/232712/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Comment

Hello @gg66 I found sharing very helpful when I was first diagnosed 4 years ago. I...

https://connect.mayoclinic.org/comment/1190817/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2024

Comment

Hello Hopeful33250. Thank you so much for your replies! I will keep you in my prayers...

https://connect.mayoclinic.org/comment/1236092/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2025

Comment

@dbamos1945 Thank you for the kind words. I was excited but had many questions when they...

https://connect.mayoclinic.org/comment/1207616/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2025

Comment

I’m not sure if your question was to me, but I’ll answer anyway. No, I’m not...

https://connect.mayoclinic.org/comment/1209850/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2025

Comment

@gg66: Agree with all above, unfortunately, NETS stinks! HOWEVER, if we were given a choice between...

https://connect.mayoclinic.org/comment/1191208/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2024

Comment

"How much was removed did they reconnect, did you wear a colostomy bag?" They removed approximately...

https://connect.mayoclinic.org/comment/1312645/

Discussion: Any one have experience with Dr J Maxwell (surgical oncologist) at MD

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2025

Comment

Hello? 👋 can’t believe I’m reading this about paraganglioma and carotid body tumor. This is what...

https://connect.mayoclinic.org/comment/1322538/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2025

Comment

May husband has an endocrino tumor , it seems that it expand to the líver si...

https://connect.mayoclinic.org/comment/1306540/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 18, 2025

Comment

My husband has been getting Lanreotide injections for 2 1/2 years after a)having surgery to remove...

https://connect.mayoclinic.org/comment/1332000/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2025

Pancreatic Cancer

Follow

3406

36 minutes ago

Follow

7809

1 hour ago

Digestive Health

Follow

17623

1 hour ago

Follow

1789

1 hour ago

Follow

9604

1 hour ago