Neuroendocrine Tumors (NETs) Support Group

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Comment

The pain in the left arm would probably be depending on how the surgery goes. I...

https://connect.mayoclinic.org/comment/1108182/

Discussion: Sarcoidosis and Lung NET, upcoming surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2024

Comment

My goodness, you’ve had the mother load when it comes to testing. I met the benchmark...

https://connect.mayoclinic.org/comment/1104138/

Discussion: What am I missing? Possible NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12, 2024

Comment

Hi, thank you! Yes, I do intend to address all my side effect issues with the...

https://connect.mayoclinic.org/comment/1103497/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2024

Comment

Being the "healthiest sick guy he knows!" is quite the compliment! Congratulations on living well, in...

https://connect.mayoclinic.org/comment/1084151/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2024

Comment

While I haven’t been diagnosed with DIPNECH I am 2 years into my treatment journey living...

https://connect.mayoclinic.org/comment/1070929/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2024

Comment

Welcome, @canuk! As someone living with NETs for over 13 years, you will have a lot...

https://connect.mayoclinic.org/comment/1070890/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2024

Comment

I was 59 when I was diagnosed and 60 when I found I was at stage...

https://connect.mayoclinic.org/comment/1054505/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2024

Comment

Hi. I was very lucky. I didn’t have to have chemo or radiation. I just had...

https://connect.mayoclinic.org/comment/1046358/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2024

Comment

Hi Theresa Does Mayo in Jacksonville have the equipment I live on Long Island NY I...

https://connect.mayoclinic.org/comment/1023929/

Discussion: 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27, 2024

Comment

I wash my wig carefully using a little mild shampoo (Paula sells one too) in wash...

https://connect.mayoclinic.org/comment/1011193/

Discussion: Anyone have hair loss with lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2024

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