Neuroendocrine Tumors (NETs) Support Group

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Comment

Thank you for taking the time to respond, it is much appreciated. I will get her...

https://connect.mayoclinic.org/comment/744465/

Discussion: Support for Young Adult with carcinoid tumor on ovary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2022

Comment

@phoebeghostwriter I'm really excited for you and others in our NET group to attend the Carcinoid...

https://connect.mayoclinic.org/comment/681226/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2022

Comment

Hi Phoebe! You have a couple of weeks until your appointment- it gives you time to...

https://connect.mayoclinic.org/comment/676540/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2022

Comment

I must say that I’m shocked! And sorry for such a disappointing visit. There are other...

https://connect.mayoclinic.org/comment/673733/

Discussion: Possible Mircoandenoma muscle wasting

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2022

Comment

Hi Phoebe! I think you are moving in the right direction, trying to get an appointment...

https://connect.mayoclinic.org/comment/669802/

Discussion: Possible Mircoandenoma muscle wasting

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2022

Comment

I'm hopeful that it is the cause but it seems like that totally depends on whichever...

https://connect.mayoclinic.org/comment/610058/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2021

Comment

Good morning Preeti, I have had 2 surgeries to remove a total of 11 insulinomas. Like...

https://connect.mayoclinic.org/comment/134707/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2020

Comment

I had a few joint aches, but primarily I lost muscularity. I couldn't do activities I...

https://connect.mayoclinic.org/comment/289833/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2020

Comment

Hi @marciamiller I also have DIPNECH and lung NETS (cancer). I’m guessing you saw Dr. Ramirez....

https://connect.mayoclinic.org/comment/1162740/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2024

Comment

@jhhaas Good idea to get a second opinion. Glad you don’t have coughing. Octreotide also helps...

https://connect.mayoclinic.org/comment/1143685/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2024

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