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Discussions (128)
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Comment
Had appts at Mayo this week and CT scan shows growth in multiple liver tumors. Switching...
https://connect.mayoclinic.org/comment/771583/
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Discussion:
Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 10, 2022
Comment
Husband was diagnosed in Nov. of last year with low grade neuroendocrine carcinoma which started at...
https://connect.mayoclinic.org/comment/941333/
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Discussion:
Interested in hearing people's experiences with PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 3, 2023
Comment
Have worsening symptoms for close to 20 years but much progression since Sep 21 with multiple...
https://connect.mayoclinic.org/comment/748820/
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Discussion:
Liver mets mistaken as hemangioma or harmatoma on MRI
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 12, 2022
Comment
My embolization was January 12, 2023 It took me about a month to truly recover After...
https://connect.mayoclinic.org/comment/829069/
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Discussion:
Bland embolization or transarterial chemoembolization (TACE)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 20, 2023
Comment
Thanks for the update. It is helpful to know how things evolve. So tumors were identified...
https://connect.mayoclinic.org/comment/1171377/
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Discussion:
Experience w/ watch and wait approach for metastatic liver tumor
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 10 5:44pm
Comment
My Journey of doctors and second opinions - Local Community PCP ordered Ultrasound because of Liver...
https://connect.mayoclinic.org/comment/842699/
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Discussion:
Has anyone chosen the Watch and Wait and regretted that choice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 13, 2023
Comment
Hello @carm1011 and welcome to the NETs support group on Mayo Connect. I am glad that...
https://connect.mayoclinic.org/comment/890939/
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Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 6, 2023
Comment
Hello @dbamos1945 I just noticed that @caitrina's post is in the liver debulking group, however, she...
https://connect.mayoclinic.org/comment/780507/
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Discussion:
NETs: Anyone has Liver debulking for liver metastasis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 3, 2022
Comment
It was a ' combined' pancreatectomy ( with spleen and gallbladder removal), liver debulking AND hysterectomy...
https://connect.mayoclinic.org/comment/847119/
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Discussion:
Who has had Distal Pancreatectomy and regretted it?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 21, 2023
Comment
I was diagnosed with NETS WITH METASTASIS to my liver. I had a transplant. It was...
https://connect.mayoclinic.org/comment/949270/
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Discussion:
Liver Transplant to Treat NETs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 17, 2023
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