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Discussions (28)
Comments (269)
Comment
Is there a pet scan That cat scan the body to see if there are any...
https://connect.mayoclinic.org/comment/1022418/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 25, 2024
Comment
Hi @nana120 I believe your hair loss will stabilize. My hair has really thinned due to...
https://connect.mayoclinic.org/comment/1008942/
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Discussion:
Anyone have hair loss with lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 3, 2024
Comment
@woundedwarrior1969 Your philosophy certainly may be true for some disorders. In the case of DIPNECH the...
https://connect.mayoclinic.org/comment/965985/
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Discussion:
Anyone had surgery to remove typical carcinoids of the lung?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 16, 2023
Comment
@triveraderubio I had to go back and read through this entire thread to remember what you...
https://connect.mayoclinic.org/comment/962925/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 11, 2023
Comment
Hello I too have a NET tumor on my left lung that has metastasized to my...
https://connect.mayoclinic.org/comment/955119/
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Discussion:
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 28, 2023
Comment
Hello, I am new to the site and I was diagnosed with a NET in the...
https://connect.mayoclinic.org/comment/916801/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 21, 2023
Comment
Hi @mir123 Thanks for sharing your info. I understand there is little historical info to go...
https://connect.mayoclinic.org/comment/909352/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 8, 2023
Comment
My primary was a tumor wrapped around my small intestine, discovered in 2007. I have been...
https://connect.mayoclinic.org/comment/898391/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 19, 2023
Comment
Hi @gmapam I have lung NETS and have had unrelated diverticulitis several times in the past...
https://connect.mayoclinic.org/comment/883798/
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Discussion:
Recently diagnosed with a NET in my middle lobe of my right lung.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 23, 2023
Comment
Welcome, @sandip. I moved your message to this existing discussion: - Neuroendocrine tumor in small bowel...
https://connect.mayoclinic.org/comment/873174/
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Discussion:
Neuroendocrine tumor in small bowel with lymph nodes involved
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 5, 2023
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