Neuroendocrine Tumors (NETs) Support Group

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Comment

Have you been diagnosed with a neuroendocrine tumor? As to your high chromogranon, do you take...

https://connect.mayoclinic.org/comment/1330156/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2025

Comment

Hi there. The biopsy can only reveal the type of tumor. And I believe whether it...

https://connect.mayoclinic.org/comment/1345210/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10, 2025

Comment

I had two lantreotide shots. They controlled my hot flashes and made me feel human but...

https://connect.mayoclinic.org/comment/1347584/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 13, 2025

Comment

I, experienced weight gain, depression, and muscle soreness. I was also lethargic, often lacking the energy...

https://connect.mayoclinic.org/comment/805097/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Comment

The protocol used by most oncologists is based on the National Comprehensive Cancer Network's recommendations, and...

https://connect.mayoclinic.org/comment/802916/

Discussion: What's your NETs treatment and surveillance protocol?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2023

Comment

My chromogranin A level is continuously rising from 500 after operation to more than 9000 now...

https://connect.mayoclinic.org/comment/800062/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

Comment

I am new to Lanreotide injections - same as Somatuline Depot monthly injections I get for...

https://connect.mayoclinic.org/comment/792305/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2023

Comment

Sharon Update: Her Chromogranin level in the most recent test was 164 (a big spike from...

https://connect.mayoclinic.org/comment/776375/

Discussion: Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

Comment

@fightinghopefully, I can understand that this would have you concerned, especially if your doctor appeared shocked...

https://connect.mayoclinic.org/comment/756048/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2022

Comment

Dear all, I was diagnosed with NET in 2017. Low grade. Non functional and asymptomatic. Until...

https://connect.mayoclinic.org/comment/755918/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2022

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