Neuroendocrine Tumors (NETs) Support Group

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Comment

I have Grade 2 Stage 4 pNET ( due toliver metastases) and am currently on Lanreotide...

https://connect.mayoclinic.org/comment/900598/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2023

Comment

Hi pavlina60 I just contacted my Oncologist and she said the bloodwork would show if we...

https://connect.mayoclinic.org/comment/1254826/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2025

Comment

@penynah: Have you found any cure for the face sores after Lanreotide injections? I would love...

https://connect.mayoclinic.org/comment/1229016/

Discussion: Facial and lip sores from lanreotide injections for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2025

Comment

It's hard to say what any one person's imaging frequency or technology used will be. I...

https://connect.mayoclinic.org/comment/1521916/

Discussion: What is the surveillance protocol for typical pulmonary NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7 4:04pm

Comment

It’s a long list! Surgery to remove the primary Y90 to address a 50% tumor burden...

https://connect.mayoclinic.org/comment/1123233/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2024

Comment

My oncologist referred me to my primary care doctors. He eventually switched my bp meds because...

https://connect.mayoclinic.org/comment/1118231/

Discussion: Anyone have problems with elevated blood pressure while on Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2024

Comment

I have been taking Lanreotide since since May of 2022. I too have bumps under the...

https://connect.mayoclinic.org/comment/821742/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 6, 2023

Comment

When will you know if the treatment was successful ? I have pancreatic with mets to...

https://connect.mayoclinic.org/comment/1007994/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2024

Comment

My pNET is also grade 2 stage 4 with liver metastases. I had my 4th injection...

https://connect.mayoclinic.org/comment/875710/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9, 2023

Comment

Thank you so much for your concern. We’re glad your doctors have given you a good...

https://connect.mayoclinic.org/comment/885962/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27, 2023

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