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266 total results
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Discussions (32)
Comments (234)
Comment
ricki8, I haven't been part of this conversation, but decided to join tonight. I went to...
https://connect.mayoclinic.org/comment/1009722/
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Discussion:
Update: Lutethera treatment is over
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 4, 2024
Comment
Re: "come say hi". Hi, I am new here. I had an appendiceal NET removed in...
https://connect.mayoclinic.org/comment/800545/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 23, 2023
Comment
Welcome @helloitsme, so glad you reached out to this group. I’m also glad to hear you’re...
https://connect.mayoclinic.org/comment/851440/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 29, 2023
Comment
Hi, Mark, I was diagnosed in 2007 with a carcinoid tumor that had wrapped around several...
https://connect.mayoclinic.org/comment/809267/
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Discussion:
Interested in hearing people's experiences with PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 10, 2023
Comment
Pippa05, I am so very sorry to hear about your struggles. And I appreciate and can...
https://connect.mayoclinic.org/comment/897706/
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Discussion:
NET symptoms despite follow-up lab work ok
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 17, 2023
Comment
@sop, I’m sorry to hear that your husband has been diagnosed with these rare tumors, but...
https://connect.mayoclinic.org/comment/943323/
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Discussion:
Interested in hearing people's experiences with PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 6, 2023
Comment
It’s so hard to generalize one experience to others except as an example. In 2014-15, I...
https://connect.mayoclinic.org/comment/1001387/
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Discussion:
Statistics on progression free survival while on SSA / Lanreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 21, 2024
Comment
Talkativeinfl, first of all, I’m so very sorry to hear about your husband’s situation and your...
https://connect.mayoclinic.org/comment/873777/
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Discussion:
Diagnosed with Stage 4 pNET: What should I know?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 6, 2023
Comment
The Whipple procedure involves the resection of the head of the pancreas. This section is where...
https://connect.mayoclinic.org/comment/985469/
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Discussion:
Weight Loss after Whipple: What strategies helped you?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 23, 2023
Comment
He was diagnosed in December 2019, had surgery in March 2020, I think the first six...
https://connect.mayoclinic.org/comment/899229/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2023
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