Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

456 total results

Comment

Hello @paulaelliott007 and welcome to Mayo Connect. This is unusual to hear of sisters both having...

https://connect.mayoclinic.org/comment/801293/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

Comment

Hi @kissoon22, welcome. This must all be so shocking and scary as you learn about your...

https://connect.mayoclinic.org/comment/790563/

Discussion: Diagnosed with carcinoid tumor in the colon: Is this cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 30, 2022

Comment

Hello @tatteesmom3 and welcome to Mayo Clinic Connect. I can certainly understand that you would want...

https://connect.mayoclinic.org/comment/667143/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 2, 2022

Comment

AMD, As you like know, diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is an extremely rare...

https://connect.mayoclinic.org/comment/661597/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2021

Comment

Hello @amd12, I'd like to join Colleen, @colleenyoung, in welcoming you to the NETs group at...

https://connect.mayoclinic.org/comment/657390/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 25, 2021

Comment

Hi, thank you! We did meet with the NET specialist. Still wants to give my mom...

https://connect.mayoclinic.org/comment/311789/

Discussion: Afinitor - Anyone have pneumonitis as a side effect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2020

Comment

Hi @marciamiller I also have DIPNECH and lung NETS (cancer). I’m guessing you saw Dr. Ramirez....

https://connect.mayoclinic.org/comment/1162740/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2024

Comment

Hi, thank you! Yes, I do intend to address all my side effect issues with the...

https://connect.mayoclinic.org/comment/1103497/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2024

Comment

Hi @aclanton @terradean My largest 2.6 cm tumor was destroyed with microwave ablation. Not a fun...

https://connect.mayoclinic.org/comment/1076548/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

Comment

EmilyFaith, l can hear your fear in your words. My question is do you have a...

https://connect.mayoclinic.org/comment/1062216/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2024

Digestive Health

Follow

17984

11 minutes ago

Follow

1015

1 hour ago

Follow

8019

4 hours ago

Follow

9856

4 hours ago

Visiting Mayo Clinic

Follow

6635

5 hours ago