Neuroendocrine Tumors (NETs) Support Group

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I am new to this forum. Have 2 carcinoid tumors in left lung that are inoperable....

https://connect.mayoclinic.org/comment/831583/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

@tomrennie lung nurse told me I don't need to worry about the half they removed in...

https://connect.mayoclinic.org/comment/1454821/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 6, 2025

Comment

Hello @cgshields1129 and welcome to the NETs support group on Mayo Connect. It sounds as if...

https://connect.mayoclinic.org/comment/1227266/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2025

Comment

@rachismarie Sorry to hear about all you’re going thru. I understand how scary it can all...

https://connect.mayoclinic.org/comment/1181823/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

Comment

I had left lower lobe removed had bad coughing to point of fracturing a lung cough...

https://connect.mayoclinic.org/comment/1066999/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2024

Comment

Neutoendocrine dyptic tumor on the outside of your lung? I have not heard.of that type. My...

https://connect.mayoclinic.org/comment/1065154/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2024

Comment

@tomrennie my Oncologist went over my most recent PET scan with me. The nodes are still...

https://connect.mayoclinic.org/comment/1491384/

Discussion: Anyone having severe dizziness or lightheadedness with NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26 6:31pm

Comment

@jessie1990 I love your fur babies! So cute!!! As for pain, if it’s anything new I...

https://connect.mayoclinic.org/comment/1435491/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2025

Comment

Yes. I was diagnosed with tumours on my lung 7 years ago. They were watching them...

https://connect.mayoclinic.org/comment/899066/

Discussion: Newly diagnosed High-Grade Neuroendocrine Lung Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Comment

I am still relatively new to this whole journey. I am curious what “type” of cancer...

https://connect.mayoclinic.org/comment/816816/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24, 2023

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