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Discussions (191)
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Comment
Hello! My name is Karla and I live in SW MO near Branson. I’m 52 years...
https://connect.mayoclinic.org/comment/787752/
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Discussion:
Anyone out there have PNET experiences and outcomes to share?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 22, 2022
Comment
Thats exactly what I was saying. I tried it after being given 12 weeks and being...
https://connect.mayoclinic.org/comment/1290468/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 26 12:34pm
Comment
Hi there, fist off.. fellow Wisconsinite.....GoPackGo. back to the NETS. My hubs was diagnosed back in...
https://connect.mayoclinic.org/comment/1231196/
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Discussion:
New Diagnosis: husband's labs are all indicating NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 7 1:58am
Comment
Wow! Let me saw that I was treated like a rock star at Mayo in Jacksonville....
https://connect.mayoclinic.org/comment/770718/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 8, 2022
Comment
Hello, Thanks for reaching out. Truthfully? I am lost. I think I am okay, other than...
https://connect.mayoclinic.org/comment/758341/
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Discussion:
Paraganglioma / Carotid Body Tumor Question
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 7, 2022
Comment
Thank you and congratulations on living with this monster. I am USUALLY an upbeat optimistic person...
https://connect.mayoclinic.org/comment/881074/
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Discussion:
Diagnosed with Stage 4 pNET: What should I know?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 19, 2023
Comment
I am a year and six month passed first surgery, big neck job. Endocrinologists at Cleveland...
https://connect.mayoclinic.org/comment/1298847/
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Discussion:
What should I do? Carcinoid symptoms but no answers.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 7 9:00am
Comment
I have been dealing with carcinoid tumors for 19 and a half years and am a...
https://connect.mayoclinic.org/comment/772394/
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Discussion:
Prognosis for Metastasized NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 12, 2022
Comment
After a lot of tests, scans and different doctors over the course of the last year,...
https://connect.mayoclinic.org/comment/912620/
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Discussion:
Anyone with an insulinoma have only therapies instead of surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 14, 2023
Comment
I was scheduled for an incisional hernia repair and removing the adrenal tumor and gland was...
https://connect.mayoclinic.org/comment/1231115/
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Discussion:
Adrenocortical carcinoma (ACC) outcomes: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 6 8:38pm
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