Neuroendocrine Tumors (NETs) Support Group

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Comment

According to the article “Multiple Primary Tumors Over a Lifetime” on CancerNetwork.com, “A cancer of a...

https://connect.mayoclinic.org/comment/810100/

Discussion: determination of primary site of NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2023

Comment

I also was diagnosed stage 4 primary in the small intestine and spread to the liver...

https://connect.mayoclinic.org/comment/1391349/

Discussion: Has anyone been diagnosed with neuroendocrine carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2025

Comment

Hi helloitsme, I'm glad you reached out. We were both very scared about the surgery. It...

https://connect.mayoclinic.org/comment/893237/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10, 2023

Comment

@hopeful33250 Hi, Don't know what to say. The Nurse Practitioner had to contact one of the...

https://connect.mayoclinic.org/comment/1443624/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Nov 20, 2025

Comment

My husband has stage 4 also. Began in small intestine and spread to liver. We are...

https://connect.mayoclinic.org/comment/1415423/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2025

Comment

I also have stage 4 metastasized from small intestine to the liver. On Ocreotide injections for...

https://connect.mayoclinic.org/comment/1408667/

Discussion: 2nd 3 month follow up

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2025

Comment

Hi harley4650, sorry to hear that treatment is not working as hoped. In addition to the...

https://connect.mayoclinic.org/comment/1037432/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2024

Comment

Glad to join this group. My tumor on the outside of the small intestine was found...

https://connect.mayoclinic.org/comment/886230/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27, 2023

Comment

Mikhailsapenko, my experience was similar to yours in that I had been in/out of the ER...

https://connect.mayoclinic.org/comment/1194781/

Discussion: Still have symptoms after surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 21, 2024

Comment

@panorman3 Maybe the problem isn’t access — it’s the risk involved: 1. Vital blood supply runs...

https://connect.mayoclinic.org/comment/1401977/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 26, 2025

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