Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Neuroendocrine Tumors (NETs) Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
1,626 total results
All
Discussions (128)
Comments (1,498)
Comment
Yes, it had already metastasized & was only determined to have been the point of origin...
https://connect.mayoclinic.org/comment/939544/
Copy link to clipboard
Discussion:
Updating about My Lanreotide Injections & CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 30, 2023
Comment
I was diagnosed with neuroendocrine metastic to the liver and 1 lymph node with pancreatic primary...
https://connect.mayoclinic.org/comment/881040/
Copy link to clipboard
Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 19, 2023
Comment
You may find this recent study helpful: https://pubmed.ncbi.nlm.nih.gov/36260828/ My wife has a large grade 2 pancreatic...
https://connect.mayoclinic.org/comment/933065/
Copy link to clipboard
Discussion:
Diagnosed with Stage 4 pNET: What should I know?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 20, 2023
Comment
I was diagnosed 5 yrs ago. It has metasticised to my liver and bones and spine/...
https://connect.mayoclinic.org/comment/929034/
Copy link to clipboard
Discussion:
Diagnosed with Stage 4 pNET: What should I know?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 12, 2023
Comment
My wife’s case is similar to yours, as she was diagnosed with NET in April 2022....
https://connect.mayoclinic.org/comment/971625/
Copy link to clipboard
Discussion:
Found PNET on tail of pancreas but told it’s nonfunctional
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 28, 2023
Comment
Might I suggest you get a 2nd opinion? It's just a thought. Also, possibly speak with...
https://connect.mayoclinic.org/comment/1072193/
Copy link to clipboard
Discussion:
Spreading NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 21 10:45am
Comment
I also have pnets on the tail end of my pancreas and liver I'm stage 4,,...
https://connect.mayoclinic.org/comment/801955/
Copy link to clipboard
Discussion:
Just diagnosed with pancreatic NET stage 1
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 26, 2023
Comment
Hello @bluedane Thank you so much for your input! They never did biopsy from her lung,...
https://connect.mayoclinic.org/comment/826555/
Copy link to clipboard
Discussion:
NET lung with Liver Metastasis (stage 4)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 15, 2023
Comment
I was diagnosed with Metastatic P-NET VIPoma in 2019. I had surgery to remove a part...
https://connect.mayoclinic.org/comment/791950/
Copy link to clipboard
Discussion:
NET-VIPoma pancreatic tumors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 3, 2023
Comment
@sturns Are the numerous tumors in your liver and lymph glands related to the pituitary tumor?...
https://connect.mayoclinic.org/comment/780276/
Copy link to clipboard
Discussion:
Pituitary tumor symptoms: joint, muscle and body aches
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 2, 2022
First
Previous
...
12
13
14
15
16
17
18
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect