Neuroendocrine Tumors (NETs) Support Group

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Comment

We received the confirmation from Mayo. His diagnosis is Atypical Stage 3/grade 2. He was given...

https://connect.mayoclinic.org/comment/1330147/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2025

Comment

Hello. Your situation is very much like mine. I was diagnosed last November. I'm receiving monthly...

https://connect.mayoclinic.org/comment/907888/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2023

Comment

@markmark007 The nurse told me the manufacturer was no longer making lanreotide. Ive had more fatigue...

https://connect.mayoclinic.org/comment/1428966/

Discussion: PET Ga-68 Dodatate Scan & Octreotide LAR Injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2025

Comment

My husband also has one in the small intestine that metastasized to the liver & spine,...

https://connect.mayoclinic.org/comment/885632/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Comment

I was diagnosed with multiple Net’s in the small bowel, and 16 Net’s on my liver...

https://connect.mayoclinic.org/comment/1023918/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27, 2024

Comment

Hello again @phoebeghostwriter Here is a link that will direct you to other tests that can...

https://connect.mayoclinic.org/comment/670209/

Discussion: Do NET tumors show up in basic blood work?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2022

Comment

I don’t mind you asking at all :). The allergy desensitization involved an admission to ICU...

https://connect.mayoclinic.org/comment/839294/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2023

Comment

There are different kinds of pet scans. There is one that is specific for nets called...

https://connect.mayoclinic.org/comment/1388706/

Discussion: I saw the surgeon. More confused than ever.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 7, 2025

Comment

I coughed constantly for 30 years due to lung NETs and DIPNECH but octreotide injections for...

https://connect.mayoclinic.org/comment/1067737/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14, 2024

Comment

Welcome Lenora, I'm so glad that you posted about your NETs story after following the discussions...

https://connect.mayoclinic.org/comment/668647/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2022

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