Neuroendocrine Tumors (NETs) Support Group

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Comment

My husband does the Lanreotide 120 every 28 days. Medicare B covers 100%. He then did...

https://connect.mayoclinic.org/comment/1134950/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2024

Comment

I take the octreotide shot every 28 days. It has made such a difference in my...

https://connect.mayoclinic.org/comment/1329029/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 10:02am

Comment

Yes, every 28 days. I cannot even feel the injection. It was only after I had...

https://connect.mayoclinic.org/comment/134517/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2017

Comment

i appreciate your sharing. Were your tumors growing and that is why they gave you 4...

https://connect.mayoclinic.org/comment/1344045/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 8 9:15pm

Comment

Just following up. I had the calcium stimulation test on Tuesday. The liver was positive for...

https://connect.mayoclinic.org/comment/843297/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

Comment

I'm not familiar with the term, "centriest" @panorman3. Perhaps the term is "mesentery"? The mesentery is...

https://connect.mayoclinic.org/comment/1257878/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14 1:12pm

Comment

I also responded to you on another thread about fatigue, hair thinning, blood sugar spikes and...

https://connect.mayoclinic.org/comment/1174579/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2024

Comment

This is @amd12. I wasn't actually diagnosed with DIPNECH, but I was told that I seemed...

https://connect.mayoclinic.org/comment/772509/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2022

Comment

@peggymariejackson @hopeful33250 @sherikayb @debbieguk @ce1b I see some of you have lung NETs, some GI NETs,...

https://connect.mayoclinic.org/comment/861008/

Discussion: Net unknown cause of breathing problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Comment

They tried the diazoxide on my husband but he had a bad reaction so ended up...

https://connect.mayoclinic.org/comment/934692/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

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