Neuroendocrine Tumors (NETs) Support Group

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Comment

I think you hit the nail on the head with the workaround. That being said, I...

https://connect.mayoclinic.org/comment/1126890/

Discussion: Lanreotide eventually becomes less effective, why?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2024

Comment

I’ve been taking octreotide injections for over 3 years for lung NETs. Cause fatigue especially the...

https://connect.mayoclinic.org/comment/1098642/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2024

Comment

@hopeful33250 Thanks for the reply! I guess the Pulmonologist at Mayo presented my case at the...

https://connect.mayoclinic.org/comment/271271/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 1, 2020

Comment

Teresa, Thanks! He ordered a couple of repeat CT scans, had many of my previous images...

https://connect.mayoclinic.org/comment/271263/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2019

Comment

Hello @megansims I can certainly understand your concern about your symptoms and also about your intermittent...

https://connect.mayoclinic.org/comment/271250/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2019

Comment

Sakota- Multifocal is a category of lung cancer that since 1960 was a redefined bronchioloalveolar carcinoma...

https://connect.mayoclinic.org/comment/232727/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Comment

Hello ya all. Had a rough time signing back in, but finally did the deed. Hope...

https://connect.mayoclinic.org/comment/134269/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2018

Comment

I guess this is the end of the run on PRRT. I have lung nets with...

https://connect.mayoclinic.org/comment/257060/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2021

Comment

Thanks! @hopeful33250 those articles are helpful! I’m a caregiver. My mom was diagnosed with NETs (Primary...

https://connect.mayoclinic.org/comment/311779/

Discussion: Afinitor - Anyone have pneumonitis as a side effect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2020

Comment

@californiazebra @nannybb @jessie1990 I just got off a Mayo NETs support group call. A lady was...

https://connect.mayoclinic.org/comment/1432500/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2025

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