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Public Support Group 2,505 total results
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I’m very sorry to hear but glad the surgeon says are options. If You don’t mind...
https://connect.mayoclinic.org/comment/763130/
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I've been told MRI with contrast is best way to detect liver matastasis. With PET/CT there...
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@jespi It seems to me the interventional radiologist should be able to explain any side effects!...
Discussion
First Lanreotide Injection: Any tips about diet and side effects?
Good morning, I am an 81 yr old female & was diagnosed with stage 4 NETS in my liver metastasized from my lung in Dec...
Discussion
Life expectancy with NETs and lifetyle as it progresses
What is my life expectancy as a result of my NET? Diagnosed 3 years ago with Grade 1, Stage 4 NETs. Primary tumor is probably...
Discussion
Keep Fighting
My wife and I visited with one of my doctors on my Mayo care team yesterday. We reviewed my recent tests. The CAPTEM chemo is...
Discussion
Has anyone had the peritoneal stripping surgery?
I was diagnosed with a small bowel obstruction (SBO) in 2022 that turned out to be Stage 2 NETS. Had surgery & did fine until...
Discussion
Did anyone else have a long struggle to getting a NETs diagnosis?
After being tested for one year at my local hospital gastro department, I was finally sent to the UK MARKEY Cancer Center in Lexington Ky...
Discussion
Merkel Cell Carcinoma: Immunotherapy while on antirejection meds
I was diagnosed with MCC and had surgery and followed with 30 treatment of radiation on the right side of my head, cheek and neck.The...
Discussion
Interested in your experience with treatments of PRRT vs surgery
I am grade 2 metastatic to the liver of unknown origin. diagnosed in Oct 2024. Dr suspects it originated in the GI Track. Octreotide has...
Discussion
Recently Diagnosed with Duodenal Neuroendocrine Tumor Grade 1
Hello everyone, looking for some help and information. I have recently diagnosed with duodenal neuroendocrine tumor Grade 1 as per Endoscopy biopsy report. After that...
Discussion
Is everyone with pNETs on creon?
Hello. I’m thinking this may have been discussed before. Sorry if I’m asking an old question Is everyone with a pNET on Creon. Pancreatic enzymes...
Discussion
New PNET Question Re: Surgery (I'm in bit of a pickle)
Hello, I’m 90 days post-diagnosis with a G1 (non-functional) pancreatic malignant neuroendocrine tumor (PNET) on my pancreas, measuring 1.3 cm (CT scan on 4/23 showed...
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