Neuroendocrine Tumors (NETs) Support Group

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Comment

Yes. I am seeing a homeopathic doctor still. Detoxification of my GI Organs; as well as...

https://connect.mayoclinic.org/comment/643477/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2021

Comment

Good Morning. I recently had a (68)Ga-DOTATATE PET/CT because of a very high Chromogranin A level-1600....

https://connect.mayoclinic.org/comment/624305/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2021

Comment

By any chance do you take PPI’s? (Pepcid, Zantac etc) Proton pump inhibitors will increase chromogranin.

https://connect.mayoclinic.org/comment/1127976/

Discussion: My Chromogranin numbers are high. What is a more accurate test?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2024

Comment

Mostly what I’ve read explains chromogranin a is a reliable bio marker for endocrine cancers. It...

https://connect.mayoclinic.org/comment/1088071/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2024

Comment

I was not having symptoms, except extreme fatigue. I have to get my esophagus stretched because...

https://connect.mayoclinic.org/comment/1072630/

Discussion: Anyone diagnosed with NET, Grade II of the esophagus/stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2024

Comment

Hi Adding a five day SBRT radiation starting next week to hit one lesion in my...

https://connect.mayoclinic.org/comment/1025698/

Discussion: My husband has had his second PRRT and is doing well!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2024

Comment

Dear pippa05, have you had GaDotatate PET scan? It is very useful for NET diagnosis, especially...

https://connect.mayoclinic.org/comment/1013141/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2024

Comment

My CA 125 was high ( hence, endometrial cancer) Also high: Chromogranin A AG GI (CA...

https://connect.mayoclinic.org/comment/972416/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2023

Comment

Hello! Here are a most common tumor markers: Chromogranin A Gastrin Serotonin AG-GI 19-9 ( CA...

https://connect.mayoclinic.org/comment/972148/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2023

Comment

After my whipple surgery @ pancreas head in May 2023, my Chromograni A went down from...

https://connect.mayoclinic.org/comment/966777/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2023

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