Neuroendocrine Tumors (NETs) Support Group

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Comment

Thank you for responding. I had no symptoms. But I had a positive colo-guard. Then I...

https://connect.mayoclinic.org/comment/1194306/

Discussion: Is there anything I can do for the bloating?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2024

Comment

Hello @wdd18054 My carcinoids were found with an upper endoscopy (is that what you meant by...

https://connect.mayoclinic.org/comment/186237/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 25, 2018

Comment

I was not having symptoms, except extreme fatigue. I have to get my esophagus stretched because...

https://connect.mayoclinic.org/comment/1072630/

Discussion: Anyone diagnosed with NET, Grade II of the esophagus/stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2024

Comment

Followers of this discussion may also be interested in these related discussions: - High or Fluctuating...

https://connect.mayoclinic.org/comment/1050522/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2024

Comment

Hi Adding a five day SBRT radiation starting next week to hit one lesion in my...

https://connect.mayoclinic.org/comment/1025698/

Discussion: My husband has had his second PRRT and is doing well!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2024

Comment

Dear pippa05, have you had GaDotatate PET scan? It is very useful for NET diagnosis, especially...

https://connect.mayoclinic.org/comment/1013141/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2024

Comment

My CA 125 was high ( hence, endometrial cancer) Also high: Chromogranin A AG GI (CA...

https://connect.mayoclinic.org/comment/972416/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2023

Comment

Hello! Here are a most common tumor markers: Chromogranin A Gastrin Serotonin AG-GI 19-9 ( CA...

https://connect.mayoclinic.org/comment/972148/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2023

Comment

After my whipple surgery @ pancreas head in May 2023, my Chromograni A went down from...

https://connect.mayoclinic.org/comment/966777/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2023

Comment

Hello My mom aged 57 is going through a similar set of problems. Back pain. To...

https://connect.mayoclinic.org/comment/944751/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2023

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