Neuroendocrine Tumors (NETs) Support Group

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Comment

I had surgery to remove sm bowel tumor which involved 6 lymph nodes had pet scan...

https://connect.mayoclinic.org/comment/866636/

Discussion: Neuroendocrine tumor in small bowel with lymph nodes involved

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Comment

I get my injections every 4 weeks. I have had 4 and will do my first...

https://connect.mayoclinic.org/comment/896537/

Discussion: How long do I wait between injections and PET scans.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

Comment

Hello @pattirushing I'm glad to hear that you have completed the initial treatment for the lung...

https://connect.mayoclinic.org/comment/847375/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2023

Comment

Yes, I would say your throat clearing is from DIPNECH. Octreotide fixed that for me. Yes,...

https://connect.mayoclinic.org/comment/1330274/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19 12:56am

Comment

I had a breast MRI last year Jan 31, 2024 and the dreaded phone call came...

https://connect.mayoclinic.org/comment/1238976/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17 9:28am

Comment

Remember to read the posts from the discussion group in my previous post, @gig666. You will...

https://connect.mayoclinic.org/comment/1022138/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

Comment

Hello @lrittmiller I hope that the comments of @californiazebra are helpful to you. As you can...

https://connect.mayoclinic.org/comment/1108139/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2024

Comment

I have Lungs NETS in both lungs. Recent growth, small amount now diagnosed with DIPNECH. I...

https://connect.mayoclinic.org/comment/1205143/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Jan 6 9:07am

Comment

@jogessert I’ll add my welcome, too. You may also be interested in this related discussion: -...

https://connect.mayoclinic.org/comment/899250/

Discussion: Newly diagnosed High-Grade Neuroendocrine Lung Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Comment

In 2019 I had to have a pet scan because I was having liver issues -...

https://connect.mayoclinic.org/comment/1056651/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

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