Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @sophiarose I appreciate your reply to @dbmenger about your difficulties with Lanreotide and Octreotide. It...

https://connect.mayoclinic.org/comment/1249618/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3, 2025

Comment

I also have Neuroendocrine cancer of the mesentery. Also get the Lanreotide shots. Like you, I...

https://connect.mayoclinic.org/comment/1531305/

Discussion: i am taking the shot "L"

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20 10:10am

Comment

It was great hearing your Story, I go for my first follow up scan June 21st...

https://connect.mayoclinic.org/comment/854820/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5, 2023

Comment

I did the Lanreotide injections for 3 months Then switched To Octreotide which I am currently...

https://connect.mayoclinic.org/comment/819293/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Comment

Thank you very much. My current oncologist is very proactive, and suggests the Lanreotide, although I...

https://connect.mayoclinic.org/comment/826520/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2023

Comment

I always tell the nurses to give my Lanreotide injection over 45 seconds or more, the...

https://connect.mayoclinic.org/comment/884554/

Discussion: Advice for making monthly injections more tolerable

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Comment

I had my visit with MD Anderson yesterday. They used my Mayo pathology report to determine...

https://connect.mayoclinic.org/comment/826032/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14, 2023

Comment

Thank Mark for your question and comments. My doctor recommended stopping the lanreotide because of lowered...

https://connect.mayoclinic.org/comment/971186/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

Comment

I'm popping in late, but thought I'd link to these related discussions: - Anyone else get...

https://connect.mayoclinic.org/comment/901293/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

Comment

Pavlina60, I also had scary hair loss beginning about a year after I started lanreotide injections....

https://connect.mayoclinic.org/comment/1126504/

Discussion: Facial and lip sores from lanreotide injections for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2024