Neuroendocrine Tumors (NETs) Support Group

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Comment

After you have the resection I assume you will start monthly injections(?), ask your Dr. I...

https://connect.mayoclinic.org/comment/1348467/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2025

Comment

I appreciate your response. Did you have any other symptoms besides flushing? Also, did you have...

https://connect.mayoclinic.org/comment/1294812/

Discussion: What should I do? Carcinoid symptoms but no answers.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2025

Comment

Hello all, I have been on PPI's since the mid 80's when I had a perforated...

https://connect.mayoclinic.org/comment/1276226/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2025

Comment

Hello . how are you? thank you very much for responding. My wife has a date...

https://connect.mayoclinic.org/comment/1234079/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2025

Comment

Gustavo1975, there are other things that can cause an elevated Chromogranin A (such as the patient...

https://connect.mayoclinic.org/comment/1234066/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2025

Comment

Having a high count on Chromogranin is indicative of a Neuroendocrine tumor, regardless of whether or...

https://connect.mayoclinic.org/comment/1232800/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2025

Comment

Hello, good afternoon. My name is Gustavo. I am from Buenos Aires, Argentina. My wife had...

https://connect.mayoclinic.org/comment/1231924/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2025

Comment

Just some info that might help you: Until you have NETs under a microscope, you're insurance...

https://connect.mayoclinic.org/comment/1227630/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2025

Comment

When it spread how much chromogranin did you have?

https://connect.mayoclinic.org/comment/1221556/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2025

Comment

Symptoms are the same..but chromogranin was 30 i will have pet scan next month

https://connect.mayoclinic.org/comment/1221538/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2025

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