Neuroendocrine Tumors (NETs) Support Group

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Comment

@vinnie694: to Vinnie and others on Lutathera PRRT infusions for NET tumor progression! I had Lutathera...

https://connect.mayoclinic.org/comment/1284269/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2025

Comment

thanks for the suggestions. I checked the info on Creon and I am on Allopurinol for...

https://connect.mayoclinic.org/comment/1118272/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2024

Comment

My husband was diagnosed 2 years ago after finding a 2” tumor pressing on his spinal...

https://connect.mayoclinic.org/comment/885643/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Comment

@rkklinger Thank you for your reply. My cancer is similar in that I first had a...

https://connect.mayoclinic.org/comment/1450639/

Discussion: Anyone had positive results from Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 1, 2025

Comment

I've had NETs of the small intestine (Mesentery) for many years. Let me offer this hypothetical:...

https://connect.mayoclinic.org/comment/1348269/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2025

Comment

@dadcue i would do the scan so if you actually do have a net/s you can...

https://connect.mayoclinic.org/comment/1523385/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9 3:13pm

Comment

Just went to the first oncologist appointment. After my doctor discussed with the hospital tumor board...

https://connect.mayoclinic.org/comment/812004/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Comment

Just scared, nervous, you know all the emotions. I wonder how long I will in the...

https://connect.mayoclinic.org/comment/750910/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2022

Comment

@fraaseo I am also Stage 2, Grade 4 small intestine metastasized to my liver with multiple...

https://connect.mayoclinic.org/comment/1418686/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 19, 2025

Comment

I've had 9 months of Lanreotide treatment every 28 days. It started in my small intestine...

https://connect.mayoclinic.org/comment/1427974/

Discussion: NETs with Liver metastasis: starting lanreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2025

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