Neuroendocrine Tumors (NETs) Support Group

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Comment

Back in 2019 they said NED. But I’m not sure as right now because I had...

https://connect.mayoclinic.org/comment/773423/

Discussion: Stage 4, High-Grade Neuroendocrine carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2022

Comment

Liked your reply, especially the SOB part made me laugh so thanks for that humor. Yeah...

https://connect.mayoclinic.org/comment/868031/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2023

Comment

@tgsenn70 & et al: so sorry you are in the position of choosing NET tumor treatment....

https://connect.mayoclinic.org/comment/1415807/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2025

Comment

I have short gut syndrome. I only have 2ft of my small intestines. I had a...

https://connect.mayoclinic.org/comment/1428178/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Nov 1, 2025

Comment

I have zero symptoms. As per my NET specialist, nine more lymph nodes should be removed...

https://connect.mayoclinic.org/comment/1281674/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2025

Comment

My husband’s journey started In 2015 with stomach pains nothing diagnosed. Then in 2019 he was...

https://connect.mayoclinic.org/comment/1121892/

Discussion: Pancreastatin level at 1500

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2024

Comment

Hi @Hope33250, a trip to ER complaining of bloating and abdominal pain, and a CT scan...

https://connect.mayoclinic.org/comment/1014237/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2024

Comment

In my case: I was told that the NET in small bowel (near duodenum) metastasized to...

https://connect.mayoclinic.org/comment/1241121/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2025

Comment

Followup answer: My invasive surgery (I’m a relatively healthy 80 year old man) was for a...

https://connect.mayoclinic.org/comment/783340/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2022

Comment

I had 5 surgeries in 13 months, due to diverticulitis. Very bad bowel blockage, had a...

https://connect.mayoclinic.org/comment/1353724/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jul 22, 2025

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