Neuroendocrine Tumors (NETs) Support Group

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Comment

You are on the right track by finding NET specialist! Relax, and give him your support!...

https://connect.mayoclinic.org/comment/1291405/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 27 5:02pm

Comment

Hi Renee, I am also in the same frustrating situation as have gone for CT scan,...

https://connect.mayoclinic.org/comment/1265384/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24 6:13am

Comment

Hello @familything and welcome to the NETs support group on Mayo Connect. I'm so glad that...

https://connect.mayoclinic.org/comment/952117/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2023

Comment

@milagro45pr - I was diagnosed with huge PNET. Had surgery on Feb.1. Ended up with removing...

https://connect.mayoclinic.org/comment/810255/

Discussion: NET in body of pancreas: What are my treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

Comment

Just thought I would contact this group to say Hi. I was diagnosed with NETS about...

https://connect.mayoclinic.org/comment/689085/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2022

Comment

Yes I will! I do know all his lymph nodes in chest and neck as well...

https://connect.mayoclinic.org/comment/1286267/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20 5:06pm

Comment

Hi, I am assuming that pNET is for Pancreatic cancer? I was told that as we...

https://connect.mayoclinic.org/comment/916665/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2023

Comment

On 4 July 2023 I was diagnosed with stage 4 pNET. I had a Whipple on...

https://connect.mayoclinic.org/comment/1345077/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10 10:17am

Comment

Hi Annie I'm so sorry about your diagnosis. Joining this group will help you to not...

https://connect.mayoclinic.org/comment/1328553/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16 3:17pm

Comment

The same thing happened to me: I’ve been on these shots for 13 months already but...

https://connect.mayoclinic.org/comment/1288910/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24 11:41am

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