Neuroendocrine Tumors (NETs) Support Group

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Comment

I wish I'd seen this video a year ago after being diagnosed with a PNET. I...

https://connect.mayoclinic.org/comment/901142/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

Comment

Hi I was diagnosed with stage 4 pNET in July of 2023, I had a Whipple...

https://connect.mayoclinic.org/comment/1268507/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28, 2025

Comment

I have pNET grade 2 stage 4 ( due to metastases in liver). I had distal...

https://connect.mayoclinic.org/comment/881155/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

Comment

In 2019 a 6mm PNET was found on the head of my pancreas. In October of...

https://connect.mayoclinic.org/comment/1397878/

Discussion: New pNET so scared

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2025

Comment

Similar. 1.6 cm pNET. I had an opinion to wait as well but wanted a second...

https://connect.mayoclinic.org/comment/1356005/

Discussion: New PNET Question Re: Surgery (I'm in bit of a pickle)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2025

Comment

I don't know your story... sorry. I got progressively sicker for over 3 years before finally...

https://connect.mayoclinic.org/comment/936712/

Discussion: Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 26, 2023

Comment

You are on the right track by finding NET specialist! Relax, and give him your support!...

https://connect.mayoclinic.org/comment/1291405/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 27, 2025

Comment

Hi Renee, I am also in the same frustrating situation as have gone for CT scan,...

https://connect.mayoclinic.org/comment/1265384/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2025

Comment

I was on CAPTEM for 13 cycles. My pnet and largest liver lesion shrunk in half....

https://connect.mayoclinic.org/comment/1358810/

Discussion: Neuroendocrine tumor pancreatic tail

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2025

Comment

Hello @familything and welcome to the NETs support group on Mayo Connect. I'm so glad that...

https://connect.mayoclinic.org/comment/952117/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2023

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